October 26th From Breakdowns to Breakthroughs

1999: Five o clock start this morning but played in my room until mum got up at six.  We did really well for time this morning and it would have continued if mummy hadn’t been so silly.  We turned out of our road when I had to say “mummy, my belt not on”.  She pulled over, strapped me in, went to pull away and stalled the car.  She then tried to start it over and over until it stunk of petrol.  We had to walk back home, get Al up (who had been working all night) and eventually we were back on the road.  When mum picked me up tonight I looked for sweeties.  She said she hadn’t bought me any but that she had bought me a present to which I said “oh, thank you mummy” – until I saw it – it was a boring old coat and a pair of army pyjamas.  Didn’t want tea tonight as decided to convince myself it was horrible before I’d even tried it.  I wrapped up warm and played in the garden – mending, building and working.

2019: No overtime for me today after all, which was just as well as yesterday was pay day. Nice date night at Bella and then out for a few bevvies and dancing. Great night but feeling a bit tired today. Missed the rugby as ad to drop Zof off for a nail course but mum has recorded it. Not that I could avoid hearing we are through to the world cup final as its everywhere!

#kids #parents #cars #work #BellaItalia #Datenight #Rugby #WorldCup

October 24th – Rugby Muddy Bakes

1999:  I awoke in the early hours to find mummy asleep on the bathroom floor!  It frightened me a bit and I started to cry which woke her up.  She took me to her bed but I didn’t like that much either because Al was there and snoring very loudly, so mum and I ended up in my bed!  Al made me a bacon sandwich for breakfast.  When mummy got up we went to see Nanny and then mum went to see Bomper.  We had egg and bacon for lunch and when mummy came to collect me she had to wait while Pa and I made some bread.  Once home I played in the garden and got very very muddy and ended up in the bath before tea.

2019: Used to love baking with Pa. He had a bread maker and I used to sit on the kitchen side watching the mixture go round and round. Although I love cooking, I don’t really do much baking – unless you can count packet cake mix?! Belatedly watched the England v Australia highlights – Watts interception was insane  as was the grubber kick. Going to miss England v All Blacks on Saturday as have put down to work overtime.  Mum’s worried I’m going to tire myself out but my thinking is I’m tired either way, so might as well get paid for it

#mentalhealth #crohns #work #kids #parents #grandparents #Rugby #cooking #baking

July 18th – Life’s Not Always a Picnic!

1999:  Happy but croaky this morning – and so is mum (well the latter anyway!).  Calpol and milk all round then!  Aunty Eesa came round with Dandell and Dessica and we all piled in her camper van and headed for the Farm and a teddy bears picnic. We saw the animals, fed the hens crisps (they didn’t seem to keen but we had fun throwing them – the crisps that is).  We went on the roundabout, bouncy castle, pony rides, playground, went to the craft tent and had ice-cream and ice lollies and lots of fun.  When we got home we played in the garden.  Mummy got the paints out and we painted pictures ……and feet……and arms……and legs………and faces!  Later, Eesa and Dandell were in the paddling pool, I was washing my car with the hose when suddenly mummy had grabbed at the hose and aunty Eesa was throwing buckets of water at mummy.  There was a massive water fight and mummy lost badly – especially as I was still holding the hose!  

2019:  Life’s no picnic today; just one of those days with lots unhappy work phone calls – and then I get one from mum saying she has a letter for me – chasing up one of my parking fines! Marks paid it for now …. until pay day .. role on next week!

#toddlers #childhood #adulthood #money #driving #parking #pcinic #MarshFarm #Southwoodhamferrers #friends #mums #work

July 13th – Kids Have a Smashing Time

1999: We didn’t get up until 7.30 but we still managed to get out for eight.  I did well with training today (once I realised Edon was still not going to relent).  Edon managed to keep me awake all day so that mummy could spend time with me tonight but I was a bit tired.  A man came round to fix the smashed TV tonight (oops) and after this I had a bath and by 6.30 was soundo on the settee.

2019:  Jump forward 20 years – pretty much the same really – apart from I didn’t pee everywhere, I had to go to work and the TV didn’t need fixing. Our lounge window, however, is a different matter – due to a youth and a football. Fancy doing something like that? Haha

#toddlers #childhood #adulthood #pottytraining #mums #tvrepairs #windowsandballs

June 15th – Performing Arts

1999: We left home at eight but had to turn round and come back as we passed the washing machine repair man on the way (although he wasn’t actually due for 20 minutes).  We left him to get on with the repairs and mum took me to Edons.  Uncle Teddy came round tonight and fixed my football nets up properly for me and then we scored some goals.  I got muddy and we put the hose pipe on to wash down my wellies.  Oh what fun – I chased Uncle Teddy round the garden spraying him!  Mummy told him the Tigger story which he thought was very funny.  Not so funny for mum though who now has to go through the procedure morning and night to get me to wee.  Well she started it and anyway it’s her problem – I’m quite happy to wee in my nappy (which I am now back in).  We were eating our tea in the garden and I started playing with the rabbit hutch. Mum told me to stop it as I would hurt myself but I chose to ignore her and next we were on the way to the doctors where the nurse gave me a lollipop and removed the huge splinter which had gone down the side of my thumb nail.  I was very brave and very good and mum was very proud of me. 

2019:  Saturday and back to work in insurance. Saturday night used to be club performance nights at Mercy, Bished and  in Norwich. No more performing with Tigger, but getting paid to dress up and dance with a free tab was great fun.

#Tigger #Toddlers #mums #toilettraining #splinters #clubbing #performing #Norwich #Mercy #Flaunt #Bished #work #childhood #adulthood

April 19th – Chronicallyliving_cd – Living with a Chronic Disease

1999: To mum’s at 5.30.  After 20 minutes I got up, took my nappy off and got back into bed!  We got up at 6.30 and I don’t know what’s got into mum, but she cooked us a fry up!  I’ve been a very good boy today and haven’t had a nappy on at all, although I did do a poo in my pants!  That was Edon’s report anyway.  When mum collected me, things changed.  When we got home the car seat was soaked.  Oops!  Mum wasn’t happy.  I played in the garden and had a go on my swing – learning to push and pull – it seemed like hard work to me, it’s far easier just to get someone to push you.  When I got off my wellies squelched – more wee – oh dear!  Mum cooked a lovely stir-fry for tea with wriggly worms (noodles).  I pretended to be a bird and ate the lot – even finishing off some of mum’s.

2019: Crohn’s is poo and I’ve decided to try and write a daily Instagram blog – Chronically_livingcd. Just thinking of my bio. Possibly something like this:

For years I was diagnosed with IBS and Monday morning tummy when mum had the control to take me to the docs. It wasn’t until November 2016, at the age of 19, that mum booked me a doctors appointment and told me I was going. She actually frog marched me there following days of diarrhoea and vomiting and the pungent smell that told her something was seriously wrong. The GP was amazing. She listened to my embarrassed talking about delicate matters and immediately knew it was IBD or Crohn’s. I did my poo test and markers were off the scale. By the time I was diagnosed the inflammation and ulceration was so severe that no amount of steroids or immunos could get it under control. But I did nearly die of sepsis – 3 days before Christmas. Luckily mum came home from work and knew (I didn’t mind her going into bossy nurse mode at that point – in fact I was too delirious to even know). So ensued 7 months of being unable to work, plans to travel to Australia cancelled, several hospital admissions and eventually a hemicolectomy in July 2018. Things had improved and I was able to do more but I ulcerated after just two months and struggling again now but considering the injections….

From IBS to Crohn’s, from immunosuppressants to sepsis, from ulceration to surgery, from more ulceration to injections. What a journey. Know the signs, get early diagnosis and treatment and look after yourself

#Chrohn’s #IBS #pottytraing #toddlers #adults #intsagram #australi #travel #hospital #surgery #pottytraining

April 9th – Handy Man Tantrums

1999:  Nan and Pa stayed the night as mum has apparently gone out on the town. I’m sure that must mean something more than just standing over the town centre for the night, even she’s not mad enough to do that.  Mum picked me up from Edon’s at midday and when we got home Pa was doing more work on the garden – building a nice new gate and bin store.  Great more workmate stuff for me, but my helping hand seemed to make Pa work slower for some reason.  The health visitor called this afternoon for my 2-year check.  She asked mum lots of questions and measured my head.  She said things looked fine – including the temper tantrums, which are apparently perfectly normal.  Yippee! Permission from the professional to strop!! 

2019: Thank goodness for Pa teaching me so much so young, as being handy has helped me over the last few months bringing the pennies in, even if it is exhausting. I don’t think anyone taught me about tantrums but they still seem to come naturally – especially if Im hungry or tired.  Feed me NOW!

#toddlers #tantrums #building #woodwork #construction #nightsout #family #food #sleep #parents #grandparents