1999 Impressed mum as I came into her room this morning and said “can I have” but needed help with the “a drink please” bit. Mum thought I was very clever and said it was far nicer than the “dink” I usually holler in her ear. That’s as may be, but it’s much harder work if you ask me. I mean, why use all those words when you can get the same result just using one? Adults! I’ll never understand them. Found the camera on the lounge floor this morning and took several photos of the telly, the carpet, the curtain, my foot etc. Should look good when the films developed (nice surprise for mum anyhow). Went to Edons and then Nanny’s today. The sun was shining and I played in the garden all day. Nanny gave me a new shirt from Uncle Teddy – a Southend United one! I was very tired tonight which resulted in tantrums; largely because mummy pulled the plug out of the bath just because I slapped her! I was back home and in bed by seven and asleep two minutes later.
2019: Long drive back from Wales to Beccles today, made worse by an hour and a half jam on the A14. Legs are pretty wobbly from yesterdays run but I’m happy I did the run and am also celebrating one year with Zof today! She has stuck by me (even holding my hand in hospital after surgery and looking after me when I was discharged at the beginning of July when we were just friends). She has inspired me, encouraged me, helped me, filled me with confidence and let me be me. Looking forwards to many more years together.
#toddlers #childhood #adulthood #vocabulary #childtalk #photography #sunshine #footbal #southendutd #tantrums #Beccles #Wales #Trafficjams #girlfriend #friends #crohns #hemicolectomy #mentalhealth
1999: I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking. Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming! By the time she got up – 45 minutes later – we were back on talking terms. I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause! Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out. I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15
2019: A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run, Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain. Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me to be waiting at the end with a long, stiff drink!
#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk
1999: Agal and I woke the whole household this morning with our apparently “loud” conversations. How rude! It’s just as well I don’t accuse mummy of this when she’s ‘natter, natter, natter’ with her friends! We stayed for toast and milk and then we drove home. Once there it was a case of antibiotics, wash, inhalers, teeth, pack bag and off to daddy’s. All my cousins were there and we had great fun in the garden and the pool. Grandma brought me home – sound asleep as usual, whereupon mummy must have transferred me to bed.
2019: Well there’s nothing like being at mums after a day of starvation and a colonoscopy. She went shopping and bought me heaps of treats yesterday, we had chinese for tea and I chilled with movies and ex box. Home today to tidy and get packing for our trip to Wales tomorrow and my mountain run for crohn’s and colitis. Have so far raised £345 on just giving and £230 at work. Thank you every one who is supporting me. If you want to keep up to date with my run up and down Snowdon on Saturday then follow me on Instagram @ chronically_livingcd
#toddlers #childhood #AbbyHardingMemorialFoundation (Agal) #parents #grandparents #family #adulthood #crohns #colitis #fundraising #instagram #Snowden #Wales #xbox #snacks #food #movies #chinese
19th – Mummy didn’t go to work today as we had to go to the doctors – I now have anti-biotics for my chest and throat and mummy has some tablets for Hayfever – we’re doing well between us. We went to Asda for essential supplies – sweets. Oh, okay we did get milk and bread etc whilst we were there. We spent some time in the garden and I painted my car again (not as bad as Uncle Teddy at my age who actually painted the neighbours car with bright pink emulsion…..and the front door………and the lamp post………). We sat on the picnic blanket eating Doritos and Salsa dip, followed by apples and cheese. I had a midday nap on the settee – for 3 hours! When I woke up the sun had gone and the wind and dark clouds had come out. It still felt warm but we weren’t sure if that was our temperature or the weathers – so we stayed in just to be on the safe side. More crisps and apple this afternoon with milk and lots of duice. Needless to say I didn’t eat my tea. I have been dry all day, inclusive of my sleep.
2019: Last day of work before the weekend. Was gonna call round and see mum on the way home but, an accident on the A146 and a huge diversion, put paid to that. One week and we’ll be on our way to Wales. I’m a bit leaner than I want to be for the charity run so have been bulking up with carbs this week, but a fasting day next Tuesday and colonoscopy next Wednesday may flush it all out again (along with any healthy microbiomes I may have left considering all my childhood antibiotics – hoping I don’t have to ever go on the long term antibiotics for Crohns)
#toddlers #crohns #IBD #colonoscopy #wales #snowdon #coughsandcolds #paint #humour #pottytraining #antibiotics #guthealth #microbiomes
1999: Mum packed the swimming bag this morning and when she came down she found me painting my toe nails (and toes) with her nail varnish. I thought it looked nice, very colourful, but mum didn’t think it suited for some reason. We headed for the pool – only to find it closed until next week. I took it well though and we went to visit Aunty Eesa instead. I played in the garden for a while with the girls and then we went home. I’ve got a bad throat and am feeling a bit poorly so mummy gave me some Calpol and I lay on the settee watching Pat. I didn’t sleep and spent the rest of the day whining – that’s mums professional diagnosis anyway. My point of view is that Dandell and Dessica came round and I didn’t want them to play with my toys. We went to the park, but things didn’t really improve there either as they kept playing on the equipment which all belongs to me, why doesn’t everyone else realise this? I fell asleep on the settee at 5.30 – much to mine and mum’s relief.
2019: So 21/2 weeks until my Snowdon run and mum discovers that the inn she’d booked through Air B&B can not accommodate us. Fortunately she booked another one at Bala. She was very pleased with herself, until I pointed out she’d booked for 1 adult and 5 children (and theres only 5 adults going!) Oh well. I’m sure she’ll sort it!
#Bala #Wales #Snowdon #toddlers #childhood #adulthood #swimming #mums #parents #swimming
1999: Up bright and early at six. I helped myself to two bags of crisps which mum happily opened from the depths of her bed and in a drowsy state. It’s great being up at this time because mum really doesn’t know what she’s doing – I swear she’ll not remember when she wakes up (I hope not anyway). Mum got up at 7.30 to a neat and tidy lounge and a potty full to the brim. I jumped in her bath, then dressed and off to Edons. Mum was really impressed when she picked me up as I haven’t had a nappy on today and I was still in the same clothes I left home in this morning. I had quite a hyper day and when we got home I went straight to the settee and watched Pat. I asked for my milk which I drank while mum cooked tea but I never did find out what was for tea as mum apparently lifted me to bed at 5.45!
2019: Apparently today is ‘Get out of the Dog House Day’. I know this as Argos have this blazoned everywhere and a single blow up mattresses on special offer. Asda on the other hand have free ice bucket with packs of Desperados and Sol Beer which are just £4. Some great bargains. But fortunately Zof and I can do our own thing whilst still being together or simply sit in our flat alone, eating snacks and minding our own business – both of which are sic. I’m just in from work, Zofs cooking tea and Mums booked the B&B for Snowdon, so all is good. Well, so long as the Lion in Gwytherin confirms the booking
Adenum: England won the cricket World Cup for the first time ever! 241 runs each. 15 runs each super over. What were the odds?
#toddlers #childhood #adulthood #snacks #munchies #pottytraining #argos #asda #beer #icebuckets #wales #Gswytherin #cricket #England #world cup
1999: Back to Edons today although it was all a bit of a rush. I decided to poo and wee everywhere today in a bid to get my lazy nappies back – but Edon stuck with it. When mum collected me we went to Aunty Karens and we all went over the park with Agal. We had luncheables in the park and all went well until I weed all over the park equipment, and all over mum, and then for some strange reason, mum decided we were leaving which I thought was very mean because Agal and I were having a great time! We went back to Karen’s and played in the garden, but I had to keep going in to use the toilet – lots! Just as we were in the car and about to leave I said “wee”. Mum thought it was just a ploy to go back in and stay longer, but I managed to squeeze one out just to prove her wrong.
2019: Had a major PT session yesterday so waddled into work today. Just under 2 weeks until my mountain run on the 27th. Mum and I looked at some rooms and cottages yesterday but need to confirm numbers before we book as Snowdonia is not cheap! Fortunately its on pay day as bank loan was not approved. If you would like to support me in raising money for crohns and colitis UK, follow my story or cheer me on then please follow my link at http://www.justgiving.com/Mountaintimetrial or chronically_livingcd on insatgram
#toddlers #mums #play #parks #toilettrainng #gymsession #mountaintrek #snowdon #snowdonia #wales #crohns #colitis #IBD #instagram #justgiving #fundraising
1999: I woke mum at three shouting “mummy, mummy, mummy”. She came to, to find me falling out of her bed (she didn’t even know I’d got in). She managed to catch hold of my legs and pull me back just in time. Mum made cooked breakfast this morning, but I only ate the bacon. It’s rainy but warm this morning. I didn’t want to go swimming – I wanted to go to the park. Mummy took me to Whacky warehouse which was good fun. I put 20p in a machine to get some Jooster sweets but I opened the door too early and they fell all over the floor so we had to try again. 40p for 11 Joosters and mummy ended up eating the lot because I didn’t even like them! Mum bought me a new pair of trainers and a big boy’s booster seat (which she now feels was a mistake because I discovered a new game – undoing the seat belt whilst in transit!) and an Action Man bag to take my many changes of clothes to Edons. I had a bacon roll from the burger van (well two bites) and a can of lemonade which I was apparently meant to share with mum! Oh well, she got double bacon roll – even if she didn’t actually want it.
2019: Mum text me today as just realised, the date I’m running up and down Snowden for @crohnsandcolitisuk, is the same day she had her head shaved to raise money for the MAP Vaccine. This is a potential cure for Crohns and is in its second phase of human trials. Corina and Lukes Big Map Shave raised £1112.03. MAP (Mycobacterium avium subspecies paratuberculosis) is proven to cause Johne’s Disease, an inflammatory bowel disease affecting livestock and is very similar to Crohn’s disease. It is thought that thid is passed to humans in pasteurised milk and the only thing that kills it is sterilisation, but I just done like it! MAP has been found in 92% of Crohns sufferers with a test developed by Prof. Hermon-Taylor , Kings College London. His team have developed a vaccine to try and eradicate this. A potential cure for over 4 million sufferers worldwide, including 1.2 million in the USA and 250,000 in the UK. For more information on Crohns and this fascinating research and the vaccine go to http://www.crohnsmapvaccine.com/
#toddlers #mums #parents #burgervans #playareas #crohns #mapvaccine #crohnscure #IBD #Colitis #childhood #adulthood #kingscollege #chronicillness #cattle #milk #Johnesdisease