1999: Early start today. Awake at 6.30 when mum bought my milk in! Is she feeling all right? It’s a bit on the early side and she did it all on her own. I held my own inhaler and spacer unit this morning, something I’ve started doing over the past week. Why does it take big people so long to realise that we will happily do things, if only they’d let us get on with it? I tried to play with my racing cars this morning but they wouldn’t work. Mum had a look at it and then blamed me accusing me of leaving the battery on which I felt was mighty unfair and so I had a look and I managed to get it going. When mum picked me up tonight we went home via the shops and I chose Jelly Tots and went running up to mum. Oh, was that not the reason we were here then? Apparently not – it was to collect a paper for Nan! She gave in. I’m just far too cute, but it’s definitely for my own good! Whilst she was paying I went for a wander. Mum found me in the cake section drooling over the iced buns; she seemed rather relieved that she reached me at that point; personally I found it quite disappointing. No milk tonight because mum forgot to buy any – even though we’d just been to the shop!. We’ve only just been to the shops! It’s typical, I really don’t know what she does with her day, or her memory come to that. Tired, milkless and asleep by 8.00
2019: Well mum hasn’t changed over the years and neither have I really. Still love my milk, although I know it probably makes my Crohn’s worse, along with gluten, but my motto is “You’re here for a good time, not a long time”. Death really doesn’t bother me but dying of boredom and restriction does. That’s not the depressed or morbid side of me talking, I’ve looked death in the eye with sepsis. I wasn’t scared – I was too delirious to know or feel anything – but I did make up my mind afterwards to live. And food is my passion so I’m gonna enjoy it. I’ve long grown out of asthma – 7 years ago but it stopped me enlisting for the army at 16 as had to be 3 years clear, and then Crohn’s came along …
#crohns #autoimmune #depression #positiveliving #food #milk #asthma #growing up