September 9th – A Spoonful of Sugar Helps the Medicine go Downstairs

1999: All the nines this morning – not so with the time though – up at 6.30 bright and breezy.  Off to Edons.  Went to toddlers this morning and proudly told everyone I’m going to “playschool tomorrow”.  Mum collected me from the swimming pool where Hayley and Dan were having their lessons.  We had cold chicken for tea; I had my hair cut and a bath and was asleep by six on the settee

2019: Got in from the airport at 4.30am. Had a few hours sleep at mms and then off to James Paget Hospital for Barium.  Had to keep going back in for more x-ray. Not sure if bad pictures or more bad news but nothing was said. Then onto see the IBD nurse who has advised I should be in for Infliximab in the next few weeks. Meanwhile mum was at home with Zof giving a teaching session on Crohn’s, autoimmune, immunosuppressants and sepsis! Mum has also heard of stem cell treatment for Crohn’s but they need to obliterate the immune system with chemo first and then reset it with stem cells. Mums not too optimistic about this but to be honest Id be happy to do any trials if there is a hope of a cure. For more info on Crohn’s and Colitis and Infliximab go to www.crohnsandcolitis.org.uk

And when I got back to mums ……. I fell asleep on the settee with Zof. Well mum was subjecting me to the ruturn of Mary Poppins (but I will take the DVD home 😊)

#mums #toddlers #sleep #crohns #IBD #infliximab #stemcelltreatment #chemo #movies

 

April 9th – Handy Man Tantrums

1999:  Nan and Pa stayed the night as mum has apparently gone out on the town. I’m sure that must mean something more than just standing over the town centre for the night, even she’s not mad enough to do that.  Mum picked me up from Edon’s at midday and when we got home Pa was doing more work on the garden – building a nice new gate and bin store.  Great more workmate stuff for me, but my helping hand seemed to make Pa work slower for some reason.  The health visitor called this afternoon for my 2-year check.  She asked mum lots of questions and measured my head.  She said things looked fine – including the temper tantrums, which are apparently perfectly normal.  Yippee! Permission from the professional to strop!! 

2019: Thank goodness for Pa teaching me so much so young, as being handy has helped me over the last few months bringing the pennies in, even if it is exhausting. I don’t think anyone taught me about tantrums but they still seem to come naturally – especially if Im hungry or tired.  Feed me NOW!

#toddlers #tantrums #building #woodwork #construction #nightsout #family #food #sleep #parents #grandparents

April 7th – Lost Balls and Parties

1999:  Up at 6 this morning, with the alarm.  Mum wasn’t in a very good mood, especially when I started whining in the bath.  Just to complete the start to her day I cried when she left me at Edon’s.  Nan picked me up later on in the morning and Pa and Bomps were home too. Uncle Teddy came round and we watched him on video doing a comedy routine.  I wasn’t to be upstaged though and started mimicking his act.  Later we played football ,  until Teddy lost the ball over the fence!  Some things never change according to Nan!

2019:  Urggh! Don’t know what time I got up today. In fact, I don’t think we fully did. Great house warming party last night but I’m beginning to wonder why I actually came home and did the housework yesterday and why I didn’t listen to mum about the alcohol

#party #football #comedy #humour #housework #toddlers #adults #growingup #alcohol

April 5th – Mischievous Days

1999: Up at 7.00, no prizes for guessing where mum was.  Whilst she was asleep I pooed my nappy and decided to take it off, because that’s what she usually does.  Mum awoke to find marks all over my bed, my carpet and her bed.  Oops!  I had to have a bath and get clean and mum had loads of washing to do. We went to Asda and bought two packed lunches and set off for Danbury lakes.  We walked around and then put a rug on the grass to eat, but we both ended up with wet bums, as the grass was so wet that it soaked through the rug.  We fed the ducks but they weren’t interested so the fish ate the bread instead.  We played ball, I threw it backward over my head, and it rolled down the slope and now the ducks are playing with it!  We went for another walk and I climbed some trees.  Mum got a bit cross though because I kept throwing stones, and she got even crosser when one hit a young boy on the head. Oh dear.  Mum was very apologetic and luckily his mummy was very understanding and forgiving.  Not so with my mum though – we had to go home. 

2019: Bit of a crappy day (literally). Back and shoulder hurting from work. Popped round to mums and ran straight in to the loo. Crohn’s has really flared – suggestions from mum to drink plenty of alcohol, avoid fried and spiced food and alcohol. Good luck with that one – we’ve got a house warming party tomorrow night. Picked up my car from mums after taping the wing mirror back on (I knocked it off after three days of having it – not happy – cant afford to get I fixed so just keep strapping it up)

#sleep #potty training #mess #mischief #toddlers #growing up #crohns #IBD #party #cars #alcohol #food

 

 

 

March 28th – Summer Time Sleepovers (with Alcohol)

1999: I awoke in Aunty Eesa’s bed with mum next to me and the rest of the house was up by 6.15 – but they didn’t seem too impressed.  Anyway I was saved later when Uncle Tony, who was away fishing, rang to say the clocks had gone forward an hour, so there!  We played a bit this morning and aunty Eesa took us home at 10.30 or is it 11.30?  We went to bed when we got in as mum is feeling poorly.  Something to do with Martel, whoever that is! We snuggled up until 3.00!  Mum looked slightly less green when we got up, but I’ve seen her looking better.  I wanted to carry on sleeping really, but eventually gave in to mum’s persistence and went out to play in the garden.  When we went to have a bath the water was really cold and mum had to boil up kettles of water to make it warm. 

2019: Hmm. No issues with Martel on Mums first sleep over but I’m a little green from Jack as I was eventually swigging out of the bottle to try and numb my ankle pain. Swelling has gone down though and I have a bit more movement so will just continue to hobble until it heals. Don’t really want to be travelling to Budapest with plaster on anyhow. Although assisted flying is quite good – I had this flying back from Ireland once with a broken toe. The first of many toe breaks. My big toes are now so numb I’m continually stubbing them as cannot feel them!

#fishing #alcohol #britishsummertime #alchohol #martel #JD #breaks #injuries #sleepovers #budapest

February 18th -Workout

1999:   Awoke at 6, prodding mum and whispering her name.  She kept telling me it was the middle of the night and that I should ‘go back to sleep’, but I didn’t.  The alarm eventually went off  and feeling bored now I shot up, turned off the alarm and put the radio on.  There’s no way she’s snoozing today, I’m wide awake.  I spent the day at Nan’s today.  We went for a walk over the town; I pushed my buggy the whole way there but managed to hitch a ride back.  Mum didn’t get in until 7 tonight and when she finally arrived to pick me up we had to go straight home.  I took a chocolate mousse with me which I was insistent on eating with mummy’s keys (she can’t drive then, we get to stay longer), but Nan persuaded me to use my fingers instead.  I don’t know if they were any cleaner than the keys to start with, but they were in a wonderful mess by the time I’d finished. When we got home we had to empty mums bedroom of all her furniture and later Dev arrived to lay her carpet.  I was a great help of course. At least that’s one roll of carpet gone. 

2019:  So this morning  work wanted me to go painting in my car. Yeah right. Then they said I could do lofts – without ladders. So I spent the day job hunting and filling in load of applications for factories, building and support worker. Need a job. Need my flat.

#toddlers #work #jobhunting #childood #mums #Adulthood #moving

February 14th Valentines Day

1999:  Daddy’s today.  I arrived back home at 5 and Granddad told mummy I had been a good boy and had fun.  I had seen all my cousins and my Aunties too.  When I got into the car to come home I had fallen asleep, mummy carried me indoors in my car seat, but when she took my hat and coat off I woke up.  Big smiles, we were glad to see one another and had big hugs and big cups of tea too. I had had dinner at daddy’s but Pa had made mummy a chicken roast and so naturally I helped her eat it, especially the afters which was bread and butter pudding.  Well there’s only one great dinner in the world and that’s the one on your mum’s plate!  I asked mum, by pointing at the telly and saying ‘rar’ if we could put the Lion King on (she’s catching onto the English language pretty fast for a mother) and we sat and watched it – we even sang and danced to some of it too but Mum had to go out of the room when the daddy lion died though – she finds it far too sad!  You’d think she’d be used to it by now – he dies fairly often after all. 

2019:  Valentines day. Zof came over tonight. I had a box of prezzies on the bed for her surrounded by rose petals and I cooked dinner. Such a romantic – unlike Mark who gave mum a card telling her to relax and not worry about the housework as it would still be there tomorrow! He did take her out to dinner though.

And Mum still has to go out of the room when the Daddy Lion dies in Lion King. She had a struggle a couple of years ago when we went to see the show in London though. I think she just shut her eyes!

#lionking #growing up #valentines day