November 6th – Santa For Christmas?

1999:  Mummy had her nails done again his morning, which was all a bit boring.  When she was finished we headed straight for Aunty Eesa’s as I’d decided I didn’t want to go swimming.  We had lunch and all played in the garden which was great fun.  The only problem today is that somehow, someone keeps wetting my trousers.  We went to Asda where we saw Nanny demonstrating Christmas cake – yum, yum.  Later, once home, Nanny called round for a cup of tea and afterwards mummy and I had some pasta and then my bath.  I fell asleep on the settee just as a lady called Leah came in and the next I knew it was 1.30, I was in my bed, but rudely awoken by loud voices downstairs.  Bloomin’ adults, I wish they’d learn to keep the noise down.  I bet mum’s been out with that Martel guy again!  Anyway, I was allowed down for my bottle of milk and then back to bed and sleep.

2019: Infusion day. 3rd loading dose in 5 weeks and I have gained another 5 kilo = 98 kg! Not sure if this is the stopping smoking and craving food or the infusions but perhaps I could get a part time job as Santa this year?! Still its better than being underweight and looking like a skeleton. Generally I’m feeling good, just tired from the loading doses, but I think I have found what is good for me treatment wise

#crohns #children #parents #granparents #christmas #infiximab #infusions #pottytraining 

October 21st – As Mischievous as Brexit (I shit you not)

1999:  Snuck into mum’s bed in the early hours and snuggled up until the alarm went off at half six.  We didn’t get up until the 3rd snooze though.  All was going well with the usual morning routine, that is until I pooed myself, which sent mummy hysterical and put us behind schedule.  It was then all a big rush but we didn’t quite make it and mum was 20 minutes late for work (apparently).  I lay on the settee watching cartoons at Edons and fell asleep so didn’t have lunch until two, which turned out to be a cooked dinner and I ate it all up.   Tomato soup for tea tonight and then mummy and I had a big big bath.  We sat downstairs watching Thomas as it is wet and cold today but I was feeling mischievous and after several warnings was marched to bed.

2019: What a change in a day 20 years make, no time to lay around watching tv now (although I still poo myself from time to time!)

Talking of time; this made me laugh today – posted on FB by @julianpopov:

The year is 2192. The British Prime Minister visits Brussels to ask for an extension of the Brexit deadline. No one remembers where this tradition originated, but every year it attracts many tourists from all over the world.

#crohns #parents #kids #ThomastheTankEngine #Brexit #pottytraining

April 17th – Water and Fire

1999:  Saturday – up at 7, but mum wasn’t having any of it and refused to get up until 8.  We did a bit of hoovering and cleaning – well mum did – I watched T.V.  Mum knew my eagerness to do housework would wear off eventually but she wasn’t actually expecting it to happen until my teenage years.  We went swimming at Maldon and I made mum laugh in the car – I kept on tutting and saying ‘on mate’.  I don’t know what was so funny, I don’t laugh when she shouts ‘oh come on mate, get a move on’ and other choice things.  We had a good swim; with slightly less air than usual in my arm bands and I kicked and moved!  We went to Donals and then to see Aunty Eesa and the girls and Dandel and I had a right giggle playing.  Mum says she is so proud of me because I have done all this without a nappy (I won’t tell her about the big wee in the swimming pool). 

2019: So its a shame about Notre Dame catching light on Monday (and hats off to the amazing firefighters who put out the blaze) but am astounded by the money raised. As  the Archbishop of Bantebury says: Imagine if Grenfell had some really important stained glass windows  and examples of gothic architecture, instead of just human beings . Contentious I know, but I couldn’t agree more. Kinda puts things into perspective

#swimming #driving #lazydays #saturdays #NotreDame #facebook #fundraising #Archbishopof Banterbury #Grenfell #macdonalds #swimming #toddlers #adults  #pottytraining #firebrigade