1999: I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking. Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming! By the time she got up – 45 minutes later – we were back on talking terms. I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause! Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out. I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15
2019: A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run, Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain. Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me to be waiting at the end with a long, stiff drink!
#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk
1999: Agal and I woke the whole household this morning with our apparently “loud” conversations. How rude! It’s just as well I don’t accuse mummy of this when she’s ‘natter, natter, natter’ with her friends! We stayed for toast and milk and then we drove home. Once there it was a case of antibiotics, wash, inhalers, teeth, pack bag and off to daddy’s. All my cousins were there and we had great fun in the garden and the pool. Grandma brought me home – sound asleep as usual, whereupon mummy must have transferred me to bed.
2019: Well there’s nothing like being at mums after a day of starvation and a colonoscopy. She went shopping and bought me heaps of treats yesterday, we had chinese for tea and I chilled with movies and ex box. Home today to tidy and get packing for our trip to Wales tomorrow and my mountain run for crohn’s and colitis. Have so far raised £345 on just giving and £230 at work. Thank you every one who is supporting me. If you want to keep up to date with my run up and down Snowdon on Saturday then follow me on Instagram @ chronically_livingcd
#toddlers #childhood #AbbyHardingMemorialFoundation (Agal) #parents #grandparents #family #adulthood #crohns #colitis #fundraising #instagram #Snowden #Wales #xbox #snacks #food #movies #chinese
1999: We went dimming this morning and they had a tombola there. I chose 6 tickets and won two prizes – a football for me and a key ring for mummy. Mum said something about Lady Luck and perhaps I could send her to her, but I reckon I’ve enough women around me as it is. We called into Aunty Eesas and I played with Dandell and Dessica whilst mummy attempted to paint Aunty Eesa’s toe nails. Personally I think I made a better job of my own the other day! We played in the garden this afternoon and mummy made me my very own drum kit – out of buckets and wooden spoons. We had Shepherds pie for tea and cleared our plates. I told mum she was a “good boy” and gave her a clap. She said she was a “good girl” and that I was a “good boy”. I wasn’t having any of that – I wanted to be a “good girl” like mummy – much to her amusement. I had 2 pears and an apple but wasn’t allowed any more fruit as was staying at Aunty Karens tonight and mum thought it a bit unfair. I don’t know why; it’s only nature. Mummy went out tonight and Karen put me to bed at half nine. She’d kept me up longer to allow Agal to get to sleep first and her plan had worked. She put me in the bed next to Agal’s cot and then the phone rang. She went off to answer it and when she came back upstairs she found me lying in bed playing a mouth organ and Agal stood up in her cot dancing! She gave up at left us to it.
2019: No drums or fun today although lots of thunder and lighting watching in the early hours. Colonoscopy at 9am and the outcome was not what I was looking for. I had 28cm of my ileum removed a year ago and, since my last colonoscopy in September, the ulceration has now increased to 10cm and also the addition of haemorrhoids. I know I’m a pain in the bum but really?! Lets hope they get me on these infusions as soon as!!! On the plus side – mums treating me to Chinese for tea (but she’s also feeding me probiotics – I hate tablets)
#chinese #food #crohns #IBD #Colitis #toddlers #childhood #adulthood #percussion #beauty #friends #infusions #autoimmune #immunosupressants #probiotics #guthealth #humour #AbbyHardingMemorialFoundation (Agal) #stormwatching
1999: Up for the day at five a.m. Mum snoozed on the settee, between requests for drinks, wees and videos! Had a sleep today at Edons, which wasn’t really surprising considering my early start and all my hard playing. Once home again tonight I played in my car and painted it again, along with myself. Ate all my tea, “ish ingers”, Alphabites, spaghetti and crisps. I had to have a bath afterwards due to spaghetti sauce and paint! Mum has continued with elocution lessons today; trying to get me to say “I am” instead of “ham” and I have now progressed to “high ham”.
2019: What Id give for fish fingers and alphabites right now. Even the High Ham sounds good. Bowel prep today so all I have is soup and laxatives. Went to mums tonight and was very Hangry so a trip ensued to Tescos for Jellies and soda. Cant wait until tomorrow when I can stuff my face!
#toddlers #childminders #mums #food #cooking #English #Language #childhood #adulthood #crohns #IBD #Colitis #bowelprep #Tescos #Jelly
1999: When mummy dropped me off at Edons she realised she had forgotten my medicine but she waved me goodbye regardless! 10 minutes later Edons phone rang and after this she went to the door to find my medicine had magicked onto her doorstep. Wow! Edon bought Jake and me a big balloon each at Asda today and we actually managed to get them home in one piece. Mummy picked me up at five – complete with a savaloy which I’d demolished before we got home. When we got there we had chips and pickled onions too. Think this is mums version of a posh two course meal! No sorry it’s going to be three – we made gingerbread men – slightly singed ones. Mum thought I was too busy washing up to notice but I’m not daft I know what that icing stuff is all about – disguise!
2019: Met Mum and mark at nan and Pa’s today for a BBQ with Uncle Terry, Aunty Dee and cousin Beau. Dee likes her BBQ burnt and I voiced to all that she’d be alright round Mums. Beau, Zof and I played footy in the garden ….. until the ball went over the fence (in my defence it is a low one). On our way home we dropped Terry at Lattitude festival for a gig and then headed home to bed.
#toddlers #mums #parents #family #grandparents #BBQ #cooking #baking #childhood #adulthood #football #Lattitude
1999: We didn’t get up until 7.30 but we still managed to get out for eight. I did well with training today (once I realised Edon was still not going to relent). Edon managed to keep me awake all day so that mummy could spend time with me tonight but I was a bit tired. A man came round to fix the smashed TV tonight (oops) and after this I had a bath and by 6.30 was soundo on the settee.
2019: Jump forward 20 years – pretty much the same really – apart from I didn’t pee everywhere, I had to go to work and the TV didn’t need fixing. Our lounge window, however, is a different matter – due to a youth and a football. Fancy doing something like that? Haha
#toddlers #childhood #adulthood #pottytraining #mums #tvrepairs #windowsandballs
1999: Slept until seven when the alarm went off. Didn’t sleep at all at Edons today and when mum picked me up it was reported that we had all been very hyper for the past hour and a half. I was very excitable. I played in the garden and distributed my sand everywhere but the sandpit. After tea I decide to paint the kitchen window with my bottle brush and soapy water. I think it looks lovely but mum reckons it might not look quite so lovely once it’s dried. Had a bath and fell asleep cuddled up to mum at 6.30
2019: Mum and Mark are still in Ireland. Kiegan is at theirs looking after the cat – Prince Eric Catona (How embarrassing). I went over for the day and we decided on a BBQ and were not going to let the rain stop us. My Aquarian mind put the double line up with the bbq cover pegged to it and stayed perfectly dry whilst the food sizzled
#toddlers #parents #ManchesterUtd #Family #BBQ #weather #starsigns #childsplay #cleaning #cats #cooking #EricCatona #
1999: We had to wait for the washing machine man again this morning before leaving for Edons. When we got there I presented mummy with my first handmade card that I had made at toddlers yesterday. I think she liked it, but I’m not that sure because her eyes looked a bit wet. When mummy picked me up she had the card in her car and said that she had also had it on her desk with her at work today. Edon reported that I have been a tyrant today (whatever that means!) and that at toddlers I hadn’t let anyone else play with the toys. Well, why should I? They’re all “mine” and it’s not my fault if the other children have a problem accepting this fact. Things didn’t get any better with mummy She thought it would be a nice relaxing change tonight to take a walk to the pub and have some chips and a “dink”. She eventually gave up on the walking, putting me in the buggy and stating that it was a change but the relaxation thing just wasn’t working out. In the pub garden, I made a discovery and I wanted to share my tip with other children. If you sit on the toy train ride and shout “mum” at the top of your voice at least 50 times, your mum may ignore you but the nice young lads give you 20p to put into the slot just to get some peace. The way I see it everyone’s a winner – they get a quiet peaceful drink, I get a ride and it hasn’t cost mum a penny!
2019: Haha. Can just imagine me continually shouting out. My stubbornness hasn’t abated. But to be fair, I wold also be one of the lads giving the child money for a ride! No pub tonight but another little truck I’ve learnt – dinner was ready and waiting for her royalty when she got home – Blue Cheese Brioche Burgers, complete with flowers and rose wine. Hmm. Not sure how the cheese is going to get on in my bowel. Think it might be in for a tough fight! They tasted good though
#toddlers #tantrums #washingmachines #repairs #childminders #toddlersclub #sharing #cooking #bluecheese #crohns #IBD #childhood #adulthood #pubgardens #screamingkids #childhood #adulthood #humour
1999: Got put back in my own bed 3 times tonight, but I won in the end. She’s just far too drowsy for a showdown in the middle of the night. It’s lovely and hot today. I played in the garden while mum made sandwiches and off we went to Marsh Farm. We arrived so early that I got to drive round the car park twice sat on mums lap. We spent 3 hours at the farm and had our photo taken on a cool postcard Machine. Once home, I played in the garden – shouting at Emma through our peep holes in the fence. We went to see Nanny and Pa and Pa has bought a cricket set for our holiday and a new bedtime story book for me (if I can get it off mum that is). We played in the garden and I shouted really loudly at a barking dog – “shut up dog”. Nanny says now she really knows how I get spoken to at home (although I must say mum has never called me ‘dog’). Mum assured her that it is only during times of severe trauma, but I would like to point out that this is her trauma and not mine – I’m absolutely fine
2019: Never was a good sleeper. Still struggle now. Mind whizzing at 100 mile an hour, or stomach cramps from wind and crohns! But once I’m asleep – it can be like waking a rock and apparently my snores are loud enough to shake a mountain. Talking of which, meeting at work today to discuss my fundraising event in support of my mount Snowdon run in July for @crohnsandcolitis.uk. Aviva are being very supportive and we are going to fund raise for 3 days at beginning of July including a cake sale. Mum offered to make some gluten and lactose free muffins but Mark pointed out I needed to sell these not give them away!
#toddlers #mums #parents #childhood #adulthood #crohns #colitis #IBD #Snowdon #fundraising #muffins #cakes #insomnia #MarshFarm #driving #mentalhealth #fundraising #Aviva #lactosefree #glutenfree #humour
1999: Same old routine this morning although I did grace mum with a small cuddle on the settee. Mummy picked me up at four from Edons and off we went to Agal’s party in Chelmsford. We had lots of yummy food and she had some wicked presents and lots of friends. I soaked everyone with a water pistol, opened one of Agal’s presents when no one was looking and blew out the candle on the cake. Well, it is my birthday, they just don’t realise. Mum didn’t seem very supportive of my theory. Agal didn’t seem to mind though – she was having a good time too. Mummy and I got home at eight and off to bed. It took me half an hour to fall asleep as I was busy planning my next birthday party.
2019: Ah. What fun we used to have with Abby. They moved to Ireland when I was 4 and we moved to Lincolnshire. Sadly we didn’t see Abby again as she died in 2005. Mum and Mark are off to see Karen and Mark and her siblings Kate and Finley in the next few weeks but money stops play for me. The last time I saw them was about 6 years ago when we went to the Abby Harding Memorial Foundation Ball in Tandragee and I also met up with John and Jacob from those 1999 years. For more information on theis wonderful foundation, supporting families of children with an acquired brain injury, you can find the Abby Harding memorial Foundation on face book
If you have suffered the loss of a child you can get support at https://www.lullabytrust.org.uk
Helpful books for children struggling with loss are:
Badgers Parting Gift (Mum and I read this when we lost Bomper)
Muddles, Puddles and Sunshine
#toddlers #birthdays #childhood #adulthood #parties #ireland #lincolnshire #bereavement #bereavementsupport #AbbyHardingMemorialFoundation #chelmsford #balls #reunions