1999: I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking. Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming! By the time she got up – 45 minutes later – we were back on talking terms. I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause! Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out. I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15
2019: A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run, Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain. Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me to be waiting at the end with a long, stiff drink!
#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk
1999: We went dimming this morning and they had a tombola there. I chose 6 tickets and won two prizes – a football for me and a key ring for mummy. Mum said something about Lady Luck and perhaps I could send her to her, but I reckon I’ve enough women around me as it is. We called into Aunty Eesas and I played with Dandell and Dessica whilst mummy attempted to paint Aunty Eesa’s toe nails. Personally I think I made a better job of my own the other day! We played in the garden this afternoon and mummy made me my very own drum kit – out of buckets and wooden spoons. We had Shepherds pie for tea and cleared our plates. I told mum she was a “good boy” and gave her a clap. She said she was a “good girl” and that I was a “good boy”. I wasn’t having any of that – I wanted to be a “good girl” like mummy – much to her amusement. I had 2 pears and an apple but wasn’t allowed any more fruit as was staying at Aunty Karens tonight and mum thought it a bit unfair. I don’t know why; it’s only nature. Mummy went out tonight and Karen put me to bed at half nine. She’d kept me up longer to allow Agal to get to sleep first and her plan had worked. She put me in the bed next to Agal’s cot and then the phone rang. She went off to answer it and when she came back upstairs she found me lying in bed playing a mouth organ and Agal stood up in her cot dancing! She gave up at left us to it.
2019: No drums or fun today although lots of thunder and lighting watching in the early hours. Colonoscopy at 9am and the outcome was not what I was looking for. I had 28cm of my ileum removed a year ago and, since my last colonoscopy in September, the ulceration has now increased to 10cm and also the addition of haemorrhoids. I know I’m a pain in the bum but really?! Lets hope they get me on these infusions as soon as!!! On the plus side – mums treating me to Chinese for tea (but she’s also feeding me probiotics – I hate tablets)
#chinese #food #crohns #IBD #Colitis #toddlers #childhood #adulthood #percussion #beauty #friends #infusions #autoimmune #immunosupressants #probiotics #guthealth #humour #AbbyHardingMemorialFoundation (Agal) #stormwatching
1999: Up for the day at five a.m. Mum snoozed on the settee, between requests for drinks, wees and videos! Had a sleep today at Edons, which wasn’t really surprising considering my early start and all my hard playing. Once home again tonight I played in my car and painted it again, along with myself. Ate all my tea, “ish ingers”, Alphabites, spaghetti and crisps. I had to have a bath afterwards due to spaghetti sauce and paint! Mum has continued with elocution lessons today; trying to get me to say “I am” instead of “ham” and I have now progressed to “high ham”.
2019: What Id give for fish fingers and alphabites right now. Even the High Ham sounds good. Bowel prep today so all I have is soup and laxatives. Went to mums tonight and was very Hangry so a trip ensued to Tescos for Jellies and soda. Cant wait until tomorrow when I can stuff my face!
#toddlers #childminders #mums #food #cooking #English #Language #childhood #adulthood #crohns #IBD #Colitis #bowelprep #Tescos #Jelly
1999: When mummy dropped me off at Edons she realised she had forgotten my medicine but she waved me goodbye regardless! 10 minutes later Edons phone rang and after this she went to the door to find my medicine had magicked onto her doorstep. Wow! Edon bought Jake and me a big balloon each at Asda today and we actually managed to get them home in one piece. Mummy picked me up at five – complete with a savaloy which I’d demolished before we got home. When we got there we had chips and pickled onions too. Think this is mums version of a posh two course meal! No sorry it’s going to be three – we made gingerbread men – slightly singed ones. Mum thought I was too busy washing up to notice but I’m not daft I know what that icing stuff is all about – disguise!
2019: Met Mum and mark at nan and Pa’s today for a BBQ with Uncle Terry, Aunty Dee and cousin Beau. Dee likes her BBQ burnt and I voiced to all that she’d be alright round Mums. Beau, Zof and I played footy in the garden ….. until the ball went over the fence (in my defence it is a low one). On our way home we dropped Terry at Lattitude festival for a gig and then headed home to bed.
#toddlers #mums #parents #family #grandparents #BBQ #cooking #baking #childhood #adulthood #football #Lattitude
1999: We didn’t get up until 7.30 but we still managed to get out for eight. I did well with training today (once I realised Edon was still not going to relent). Edon managed to keep me awake all day so that mummy could spend time with me tonight but I was a bit tired. A man came round to fix the smashed TV tonight (oops) and after this I had a bath and by 6.30 was soundo on the settee.
2019: Jump forward 20 years – pretty much the same really – apart from I didn’t pee everywhere, I had to go to work and the TV didn’t need fixing. Our lounge window, however, is a different matter – due to a youth and a football. Fancy doing something like that? Haha
#toddlers #childhood #adulthood #pottytraining #mums #tvrepairs #windowsandballs
1999: Went to Edon’s and screamed and cried when mum left. How can she still walk away? She must have a heart of stone. When she picked me up later mum said we were going to Donals and then on to see Aunty Karen and that I had to have a nappy on. I didn’t want it though and when she picked me up to leave; I bit her and slapped her 3 times in the face. I think she was a bit upset, but so am I, I’m fine without my nappy – and I proved it. We drove straight to Karen’s – no Donals now – and I fell asleep in the car, AND stayed dry the whole time. We went for a walk to the police station and I posted a letter through the letterbox. It was great, loads of police cars and vans, didn’t see any policemen though, which was a bit disappointing. Mum reckons I won’t be so eager to see the long arm of the law when I get older. When we got home I did a wee on the toilet and didn’t have a nappy on at all this evening. Mother you have to trust me!
2019: Jesus! I look back at this and other pics and see how ill I was with my Crohn’s 2 years ago. I was losing weight even on steroids. I have come a long way since then and since surgery. Am not liking the thought of immunos again due to fear of sepsis return, but nor do I want to be so uncontrolled. Hoping to start injections when I see the doc next week. Hopefully I will then have a better physical and emotional control on things
#mentlahealth #crohns #IBD #physicalhealth #growingup #toddlers #adults #weight
1999: Mum’s feeling a bit worse for wear this morning, so she lay on the settee and I let rip in the lounge. She let me have my last Easter egg for breakfast – well it is Saturday, and mine lasted longer than hers did! I got dressed and went to play in the garden and oops! – made a mess of my pants. I ended up in the bath, which I didn’t consider very fair as I’d only just got dressed, and needed an afternoon nap. We had a joint dinner and lunch at 3.00 and then walked to town to buy some milk and ‘duice’. I also got a packet of wine gums (named after me apparently) and we sat on the wall watching the boys on their skateboards. I walked nearly all the way back but had to have a piggy back some of the way (which I thought was great fun but mum didn’t seem so keen). I played in the garden and I got extremely muddy as mum was washing all my garden toys and I was helping. Our nicely mown grass is now a mudslide. Yippee! Watched Lion King again tonight – the things I have to do to keep mum amused
2019: Mum came round for dinner tonight but I forgot that the sausages weren’t gluten free so I cooked the chops she had to pop to the shops to buy. Made the mistake of telling her my Crohn’s is really playing up (like she didn’t know anyway) and so ensued the “make sure you go to your appointment”/ “I will if I’m not working”/”Well you wont be working if your back in hospital” conversation! My bad ………. Still. I ended it b putting Ant-Man on. Still having to entertain her.
#crohns #IBD #hospital #antman #Lionking #movies #cooking #dinner #easter #chocolate #