November 4th – Its All a Mix UP!

1999: Up at seven and we were lazy  again.  I reminded mummy of her pottery car and plant that I bought her yesterday with my own pennies and she says it’s lovely and very special.  Toddlers this morning but when Edon went to get her coffee I cried and decided to cling – I didn’t want to risk her going anywhere without me again.  Have been in a lovely mood all day, which seemed to make the biguns cheerful.  I gave mummy a big hug when she came to collect me and got nicely into the car without any fuss.  We had pasta for tea and then cuddled up on the settee with strawberry milk!  I was starting to drop off when I saw Uncle Terry on an advert for a show – I was very excited, but fell asleep cuddling mum a while later.

2019: Off today for infusions – only to find its not today – its Wednesday. Not a great start to the week as all planned to do my health and safety training for working on site tomorrow at midday but now have to go into work today and tomorrow and throw £21 down the drain and reschedule. Then need to take Wednesday and Thursday off instead for infusions and recovery with a formal absence meeting already pending and redundancies. Just hope they take anxiety, depression and Crohn’s as the disabilities they are and not random sickness ……

#children #parents #childminders #crohns #mentalhealth #infliximab #toddlers #cuddles

April 16th – From Potty Training to Crohn’s Control

1999:  Went to Edon’s and screamed and cried when mum left.  How can she still walk away?  She must have a heart of stone.  When she picked me up later mum said we were going to Donals and then on to see Aunty Karen and that I had to have a nappy on.  I didn’t want it though and when she picked me up to leave; I bit her and slapped her 3 times in the face.  I think she was a bit upset, but so am I, I’m fine without my nappy – and I proved it.  We drove straight to Karen’s – no Donals now – and I fell asleep in the car, AND stayed dry the whole time.  We went for a walk to the police station and I posted a letter through the letterbox.  It was great, loads of police cars and vans, didn’t see any policemen though, which was a bit disappointing.  Mum reckons I won’t be so eager to see the long arm of the law when I get older.  When we got home I did a wee on the toilet and didn’t have a nappy on at all this evening. Mother you have to trust me!

2019: Jesus! I look back at this and other pics and see how ill I was with my Crohn’s 2 years ago. I was losing weight even on steroids. I have come a long way since then and since surgery. Am not liking the thought of immunos again due to fear of sepsis return, but nor do I want to be so uncontrolled. Hoping to start injections when I see the doc next week. Hopefully I will then have a better physical and emotional control on things

#mentlahealth #crohns #IBD #physicalhealth #growingup #toddlers #adults #weight

March 4th – I’m a Foodie Born and Bread

1999: Early start today.  Awake at 6.30 when mum bought my milk in!  Is she feeling all right?  It’s a bit on the early side and she did it all on her own. I held my own inhaler and spacer unit this morning, something I’ve started doing over the past week.  Why does it take big people so long to realise that we will happily do things, if only they’d let us get on with it?  I tried to play with my racing cars this morning but they wouldn’t work.  Mum had a look at it and then blamed me accusing me of leaving the battery on which I felt was mighty unfair and so I had a look and I managed to get it going. When mum picked me up tonight we went home via the shops and I chose Jelly Tots and went running up to mum.  Oh, was that not the reason we were here then?  Apparently not – it was to collect a paper for Nan! She gave in.  I’m just far too cute, but it’s definitely for my own good!  Whilst she was paying I went for a wander.  Mum found me in the cake section drooling over the iced buns; she seemed rather relieved that she reached me at that point; personally I found it quite disappointing.  No milk tonight because mum forgot to buy any – even though we’d just been to the shop!.  We’ve only just been to the shops!  It’s typical, I really don’t know what she does with her day, or her memory come to that.  Tired, milkless and asleep by 8.00

2019: Well mum hasn’t changed over the years and neither have I really. Still love my milk, although I know it probably makes my Crohn’s worse, along with gluten, but my motto is “You’re here for a good time, not a long time”. Death really doesn’t bother me but dying of boredom and restriction does. That’s not the depressed or morbid side of me talking, I’ve looked death in the eye with sepsis. I wasn’t scared – I was too delirious to know or feel anything – but I did make up my mind afterwards to live. And food is my passion so I’m gonna enjoy it. I’ve long grown out of asthma – 7 years ago but it stopped me enlisting for the army at 16 as had to be 3 years clear, and then Crohn’s came along …

#crohns #autoimmune #depression #positiveliving #food #milk #asthma #growing up

 

March 1st – Cutting Teeth

1999: Spent the day at Edon’s until five when mum took me to Nan’s for tea.  I was really pleased as mum said we were going but I didn’t quite believe her until we rounded the corner of her road and then I got really excited shouting ‘Nan, Nan, Nan’.  Uncle Eddy and Pa were there too!  After 20 minutes mum disappeared.  Charming – more quality time!  She returned an hour later in a new shiny red car – I was very excited and had a little go in the driver’s seat. We went home in the NEW car, which is actually 3 years old, but it’s all ours!  I had a bath, complete with hair wash (I have managed to avoid it for a week now) and I wasn’t too impressed with Mother pouring all that water over my head.  Afterwards I found the lion cake and decided to demolish it.  Mum discovered another tooth coming = 10 at the bottom and eight on top.

2019:  Home alone today and tonight as Mum and Mark have gone to the theatre and Zof is out with friends. Low, low, low day – mum always knows – she text me to check I was in a good place before buggering off out as she put it. I’m ok. Well ok to be left on my own. She rang and faced timed me a couple of times too. I sometimes feel as if I’m cutting teeth all over again in this adult world, but wonder if it was actually any less painful back then …..

#teething #family #grandparents #toddlers #adults #work #depression #demotivation

 

February 28th Job Hope Brightens the Mood

1999:  Couldn’t be bothered to get up this morning I lay in bed calling ‘Mum, Mum’ but she did not answer.  Then I called ‘Nan’ and I heard movement and a figure entered my room saying ‘no, you were right the first time!’  I was sooo pleased to see her and we had big hugs and cuddles.  We went downstairs for milk and juice and made ‘bix’ for ‘fast’ and sat eating and drinking at the table.  At 10.30 Granddad came to fetch me to see daddy.  I had a lovely day, my cousins came round in the morning and we all played.  I had so much fun that I didn’t sleep all day and fell asleep on the way home. Tonight Nan and Pa came round with peaches and jelly and cake.  I kept putting the candles on and blowing them out – mum didn’t seem to blow out any – perhaps you don’t like that sort of thing when you get older.  

2019:  Went out to meet a friend who is back on site over this way as caravan sales manager. Was great to catch up and have breakfast and he has also told me of a sales job going on a nearby site. Went to Zof’s tonight to update my CV and do covering letter which I have now sent over to him. That has given me a bit of hope again, as the agency I keep ringing about factory work just isn’t getting anywhere in a hurry. At least we’re not actually in the flat yet and my current landlord is Mum! 

#caravans #sales #work #growingup #kids #adults

January 12th – Antibiotics, Food and Gut Bacteria

 

1999:  We arrived for breakfast to discover the high chair ready and waiting.  I ate bacon, a sausage (which looked remarkably like poo, I picked it up and said so very, very loudly, at which point Mummy crawled under the table, I don’t know why, she can be so embarrassing at times) and a slice of toast and marmalade.   Trudged around in the freezing cold sleet for 30 minutes to find a GP surgery as I keep falling over and am now back on antibiotics for ear infection.  We went swimming and I did really well holding mummy’s hand up and down the swan slide and so eventually she let me have a go on my own.   I fell backwards; mummy caught my leg just in time.  She had a banged leg and I have a banged back. In the dining room tonight I wanted the “ man” (waiter) to pour my juice into my cup.  He obliged saying “hold it tight” as I held on to my cup.  All was going well until half way through when I dropped the whole lot over my trousers.  We had to go back to the room to change and I had hysterics thinking I was going to bed, but we went out again – dancing. I have won the hearts of all, nearly everyone here knows my name and I had several dances with several ladies tonight.  I wave to them all when I leave one room and say hello when I go in to another.  

2019: Well after a hectic week Zof took me out to dinner last night at Bella – our first date restaurant – love Italian and my table manners have improved, although I remain fairly clumsy so drink spillages are not that uncommon. I don’t swim much now but did train as a life guard when I was 17 and spent a year at Camber Sands and a year at Scratby lifeguarding until going on to other things. One of those things being club host and entertainer – still love to dance and be the centre of attention some nights, although other days and nights will see me hiding away from the world with anxiety and depression and I struggle to even place an order at MacDonalds. Things are much better since I met Zof though and we are now thinking of getting our own place. Crohns not great at the moment but I continue of the immune’s and mum is certain a lot of this is due to all the antibiotics I had as a child knocking out my healthy gut bacteria so keeps trying to feed me them too (lucky she’s away at the moment!)