July 24th – Crohn’s is a Pain in the Bum

1999:  We went dimming this morning and they had a tombola there.  I chose 6 tickets and won two prizes – a football for me and a key ring for mummy.  Mum said something about Lady Luck and perhaps I could send her to her, but I reckon I’ve enough women around me as it is.  We called into Aunty Eesas and I played with Dandell and Dessica whilst mummy attempted to paint Aunty Eesa’s toe nails. Personally I think I made a better job of my own the other day!  We played in the garden this afternoon and mummy made me my very own drum kit – out of buckets and wooden spoons.  We had Shepherds pie for tea and cleared our plates. I told mum she was a “good boy” and gave her a clap.  She said she was a “good girl” and that I was a “good boy”.  I wasn’t having any of that – I wanted to be a “good girl” like mummy – much to her amusement.  I had 2 pears and an apple but wasn’t allowed any more fruit as was staying at Aunty Karens tonight and mum thought it a bit unfair.  I don’t know why; it’s only nature.  Mummy went out tonight and Karen put me to bed at half nine.  She’d kept me up longer to allow Agal to get to sleep first and her plan had worked. She put me in the bed next to Agal’s cot  and then the phone rang.  She went off to answer it and when she came back upstairs she found me lying in bed playing a mouth organ and Agal stood up in her cot dancing!  She gave up at left us to it.

2019: No drums or fun today although lots of thunder and lighting watching in the early hours. Colonoscopy at 9am and the outcome was not what I was looking for. I had 28cm of my ileum removed a year ago and, since my last colonoscopy in September, the ulceration has now increased to 10cm and also the addition of haemorrhoids. I know I’m a pain in the bum but really?! Lets hope they get me on these infusions as soon as!!! On the plus side – mums treating me to Chinese for tea (but she’s also feeding me probiotics – I hate tablets)

#chinese #food #crohns #IBD #Colitis #toddlers #childhood #adulthood #percussion #beauty #friends #infusions #autoimmune #immunosupressants #probiotics #guthealth #humour #AbbyHardingMemorialFoundation (Agal) #stormwatching

 

 

June 24th – Football and Results

1999;  Weather not so hot today so I was back in trousers. After Edons I played in the garden and watered the plants.  I had crisps, strawberries and melon for tea (hardly cordon bleu but I enjoyed it).  I watched mum peel off the melon skin with her knife and then copied her with my own plastic one but it looked much easier than it was.  Mum and I played football.  I’m getting quite good at scoring goals but mummy has to play goal scoring too, to my “ready, steady, go”.   I had such fun that I refused to come in for a bath and after many hysterics and tantrums; I ended up in bed at 6.30.  What ever happened to free expression?  We did have a cuddle and a story though.  We had ‘Peepo’ for the first time in a couple of weeks and I knew most of the words.  I wasn’t to be defeated though and stayed awake until 8.45, following a bottom shower at eight due to the poo factor.

2019: Continuing on the bum theme – mum rang hospital today and they cannot see an appointment with IBD nurse and they are not sure what’s happening with my colonoscopy re-schedule or the barium I was supposed to have after my early year check up. On the flip side, she has managed to get me an appointment with the IBD nurse on Thursday – Result!

#crohns #toddlers #toilettraining #childhood #adulthood #football #goal #tantrums #hospitals #chronicillness #food #fruit

 

April 10th – Entertaining Conversations

1999:  Mum’s feeling a bit worse for wear this morning, so she lay on the settee and I let rip in the lounge. She let me have my last Easter egg for breakfast – well it is Saturday, and mine lasted longer than hers did!  I got dressed and went to play in the garden and oops! – made a mess of my pants.  I ended up in the bath, which I didn’t consider very fair as I’d only just got dressed, and needed an afternoon nap.  We had a joint dinner and lunch at 3.00 and then walked to town to buy some milk and ‘duice’.  I also got a packet of wine gums (named after me apparently) and we sat on the wall watching the boys on their skateboards.  I walked nearly all the way back but had to have a piggy back some of the way (which I thought was great fun but mum didn’t seem so keen). I played in the garden and I got extremely muddy as mum was washing all my garden toys and I was helping.  Our nicely mown grass is now a mudslide.  Yippee!  Watched Lion King again tonight – the things I have to do to keep mum amused

2019:  Mum came round for dinner tonight but I forgot that the sausages weren’t gluten free so I cooked the chops she had to pop to the shops to buy. Made the mistake of telling her my Crohn’s is really playing up (like she didn’t know anyway) and so ensued the “make sure you go to your appointment”/ “I will if I’m not working”/”Well you wont be working if your back in hospital”  conversation! My bad ………. Still. I ended it b putting Ant-Man on. Still having to entertain her.

#crohns #IBD #hospital #antman #Lionking #movies #cooking #dinner #easter #chocolate #

April 5th – Mischievous Days

1999: Up at 7.00, no prizes for guessing where mum was.  Whilst she was asleep I pooed my nappy and decided to take it off, because that’s what she usually does.  Mum awoke to find marks all over my bed, my carpet and her bed.  Oops!  I had to have a bath and get clean and mum had loads of washing to do. We went to Asda and bought two packed lunches and set off for Danbury lakes.  We walked around and then put a rug on the grass to eat, but we both ended up with wet bums, as the grass was so wet that it soaked through the rug.  We fed the ducks but they weren’t interested so the fish ate the bread instead.  We played ball, I threw it backward over my head, and it rolled down the slope and now the ducks are playing with it!  We went for another walk and I climbed some trees.  Mum got a bit cross though because I kept throwing stones, and she got even crosser when one hit a young boy on the head. Oh dear.  Mum was very apologetic and luckily his mummy was very understanding and forgiving.  Not so with my mum though – we had to go home. 

2019: Bit of a crappy day (literally). Back and shoulder hurting from work. Popped round to mums and ran straight in to the loo. Crohn’s has really flared – suggestions from mum to drink plenty of alcohol, avoid fried and spiced food and alcohol. Good luck with that one – we’ve got a house warming party tomorrow night. Picked up my car from mums after taping the wing mirror back on (I knocked it off after three days of having it – not happy – cant afford to get I fixed so just keep strapping it up)

#sleep #potty training #mess #mischief #toddlers #growing up #crohns #IBD #party #cars #alcohol #food

 

 

 

April 4th – Eggs, Sausages and Crohn’s

1999: – Easter Sunday – More eggs!  Mum wanted to lie in (again), so she put my potty out, the telly on, made everywhere safe and left me to get on with it – which I did with a vengeance.  I totally trashed the place; it was great fun, especially with no one around to keep saying that horrible ‘no’ word.  When mum eventually got up we went into the garden, I played and Mum was weeding and now the beds look really bare – just mud everywhere.  Later I watched mum trying to dig up an old azalea in the front garden, which was quite funny.  She put the spade under the plant and was sitting on the handle.  It took forever to budge, but eventually she won (she always does).  We had a bath and put shorts and T-shirt on as it had gotten really hot.  We went round to see Nan and Pa and by the time we got there the sun had gone in and mum had to go back home and get some warmer clothes

2019:  Wish it had cooled today as I back to work in the heat. I like being outside but looking forward to starting at Aviva as office work wont take such a toll on my body. Had a slightly dodgy sausage tonight which bought on D&V and a Crohn’s flare. Bloomin ulcers. Not good

#crohn’s #easter #eggs #chocolate #weather #gardening #work #eating #aviva

March 31st – From River Mud to Thermal Spa’s. South Woodham to Budapest

1999:  Mum didn’t seem too enthusiastic this morning – she muttered something about not having to be to work until 9.00 today.  Great – more time to play then. After half an hour of kisses (eleven to be precise), pulling off the covers and shouting “up”, jumping on the bed and clambering all over her, she eventually decided to get up!  Went to Edon’s for a little while and then Nan picked me up.  I was very pleased to see her, and when we got home Bomper was there too.  We went for a walk over the river to see all the boats – and the mud!  Then we went to Asda and had lunch there (actually in the restaurant this time!) Pa and I had great fun playing in the garden – we built ramps for my cars and a ramp, which I walked along pretending to be a tight ropewalker. Have been a bit boulchy today (so they say) and ended it by smacking mum in the face.  The next I knew I was whisked home and put to bed, with milk, but no story.  I was tired anyway.  See if I care.

2019: Happy Mothers day from Budapest. Have facetimed mum a couple of times from this amazing city and told her to bin off anything else she has booked and come here! Have spent the day at the thermal baths and spas (after running back for my trunks) and had an amazing day. Mums really into all the organic and natural health stuff so lets see if this has settled my crohns.

#eating #parents #grandparents #cars #playing #budapest #cities #thermalbaths #aunatural #chrohns #IBD #autoimmune #southwoodham

 

 

 

March 29th – Letting Rip

1999:  I waved to all the cars, buses and lorries on the way, to Edons today and not one of them waved back, I didn’t think that was a very good start to the day.  It was quiet today, as it’s half term, so no Jake or Josh, but Lea and Dan were there.  I didn’t want mum to go this morning and this evening I came running out to meet her.  There was an Easter egg in the back of the car, which I spied straight away, and ended up eating it all but still ate my tea (which I feel was a good move on my part) Played in the garden, watched some of Simbas Pride with mum after my bath, and was in bed and asleep by 8.00.  Not a very eventful day, but the chocolate was good!

2019:  I clearly used to love chocolate. Still like my sweets but chocolate is one of my worst “go through me” intakes. But then most foods do and I’m either eating for England or not at all. Got caught short in Tesco the other day and had to run (luckily pre ankle injury!). I followed the toilet signs only to come across a large rail of clothing blocking my path. I had to run all the way round another two aisles and came to the disabled loo first with a big sign “Not all disabilities are visible”. Phew! I went in, pulled everything down and sat on the throne just in time to do a big “Crohn’s let rip”. Relief. Bugger. There was no bloody toilet roll. So ensued 10 minutes of trying to get Zofs attention by text (who is usually glued to her phone) and eventually she responded, found me loo roll and deposited it to me in the disabled loo. No need to text to get her attention today as we are glued together, at Stansted and on our way to Budapest. Lets Party!

#holidays #budapest #stansted #flying #crohns #IBD #IBS #tescos #shopping #eating #sweets #chocolte #eastereggs #toddlers #growingup #childminders