July 24th – Crohn’s is a Pain in the Bum

1999:  We went dimming this morning and they had a tombola there.  I chose 6 tickets and won two prizes – a football for me and a key ring for mummy.  Mum said something about Lady Luck and perhaps I could send her to her, but I reckon I’ve enough women around me as it is.  We called into Aunty Eesas and I played with Dandell and Dessica whilst mummy attempted to paint Aunty Eesa’s toe nails. Personally I think I made a better job of my own the other day!  We played in the garden this afternoon and mummy made me my very own drum kit – out of buckets and wooden spoons.  We had Shepherds pie for tea and cleared our plates. I told mum she was a “good boy” and gave her a clap.  She said she was a “good girl” and that I was a “good boy”.  I wasn’t having any of that – I wanted to be a “good girl” like mummy – much to her amusement.  I had 2 pears and an apple but wasn’t allowed any more fruit as was staying at Aunty Karens tonight and mum thought it a bit unfair.  I don’t know why; it’s only nature.  Mummy went out tonight and Karen put me to bed at half nine.  She’d kept me up longer to allow Agal to get to sleep first and her plan had worked. She put me in the bed next to Agal’s cot  and then the phone rang.  She went off to answer it and when she came back upstairs she found me lying in bed playing a mouth organ and Agal stood up in her cot dancing!  She gave up at left us to it.

2019: No drums or fun today although lots of thunder and lighting watching in the early hours. Colonoscopy at 9am and the outcome was not what I was looking for. I had 28cm of my ileum removed a year ago and, since my last colonoscopy in September, the ulceration has now increased to 10cm and also the addition of haemorrhoids. I know I’m a pain in the bum but really?! Lets hope they get me on these infusions as soon as!!! On the plus side – mums treating me to Chinese for tea (but she’s also feeding me probiotics – I hate tablets)

#chinese #food #crohns #IBD #Colitis #toddlers #childhood #adulthood #percussion #beauty #friends #infusions #autoimmune #immunosupressants #probiotics #guthealth #humour #AbbyHardingMemorialFoundation (Agal) #stormwatching

 

 

July 19th – Antibiotics and Gut Health

19th –  Mummy didn’t go to work today as we had to go to the doctors – I now have anti-biotics for my chest and throat and mummy has some tablets for Hayfever – we’re doing well between us.  We went to Asda for essential supplies – sweets.  Oh, okay we did get milk and bread etc whilst we were there.  We spent some time in the garden and I painted my car again (not as bad as Uncle Teddy at my age who actually painted the neighbours car with bright pink emulsion…..and the front door………and the lamp post………).  We sat on the picnic blanket eating Doritos and Salsa dip, followed by apples and cheese.  I had a midday nap on the settee – for 3 hours!  When I woke up the sun had gone and the wind and dark clouds had come out.  It still felt warm but we weren’t sure if that was our temperature or the weathers – so we stayed in just to be on the safe side.  More crisps and apple this afternoon with milk and lots of duice.  Needless to say I didn’t eat my tea.  I have been dry all day, inclusive of my sleep. 

 2019:  Last day of work before the weekend. Was gonna call round and see mum on the way home but, an accident on the A146 and a huge diversion, put paid to that. One week and we’ll be on our way to Wales. I’m a bit leaner than I want to be for the charity run so have been bulking up with carbs this week, but a fasting day next Tuesday and colonoscopy next Wednesday may flush it all out again (along with any healthy microbiomes I may have left considering all my childhood antibiotics – hoping I don’t have to ever go on the long term antibiotics for Crohns)

#toddlers #crohns #IBD #colonoscopy #wales #snowdon #coughsandcolds #paint #humour #pottytraining #antibiotics #guthealth #microbiomes

March 29th – Letting Rip

1999:  I waved to all the cars, buses and lorries on the way, to Edons today and not one of them waved back, I didn’t think that was a very good start to the day.  It was quiet today, as it’s half term, so no Jake or Josh, but Lea and Dan were there.  I didn’t want mum to go this morning and this evening I came running out to meet her.  There was an Easter egg in the back of the car, which I spied straight away, and ended up eating it all but still ate my tea (which I feel was a good move on my part) Played in the garden, watched some of Simbas Pride with mum after my bath, and was in bed and asleep by 8.00.  Not a very eventful day, but the chocolate was good!

2019:  I clearly used to love chocolate. Still like my sweets but chocolate is one of my worst “go through me” intakes. But then most foods do and I’m either eating for England or not at all. Got caught short in Tesco the other day and had to run (luckily pre ankle injury!). I followed the toilet signs only to come across a large rail of clothing blocking my path. I had to run all the way round another two aisles and came to the disabled loo first with a big sign “Not all disabilities are visible”. Phew! I went in, pulled everything down and sat on the throne just in time to do a big “Crohn’s let rip”. Relief. Bugger. There was no bloody toilet roll. So ensued 10 minutes of trying to get Zofs attention by text (who is usually glued to her phone) and eventually she responded, found me loo roll and deposited it to me in the disabled loo. No need to text to get her attention today as we are glued together, at Stansted and on our way to Budapest. Lets Party!

#holidays #budapest #stansted #flying #crohns #IBD #IBS #tescos #shopping #eating #sweets #chocolte #eastereggs #toddlers #growingup #childminders

February 4th – Cooking and decorating

1999:  Mummy’s going back to work today, after having been off sick, so it was on with the old routine.  I did help her to have a shower though and even fetched a towel for her, such the little gentleman.  Mum collected me from Edons after work and I helped her to cook the tea.  We were having burgers, so I took them out the packet and started licking them but spoil sport mum took them off of me.  My tummy’s fine thank you very much.  We ate the cooked burgers with Thomas the Tank pasta shapes – with a slight variation – singed flavour.  After dinner I dished up the ice cream, but as usual ate most of it out of the carton – I find it tastes better that way.  Tonight mummy emptied her chest of drawers ready for painting, she was so engrossed she didn’t realise I’d managed to get the lid off the gloss paint and had loaded a brush until it was a tad too late.  I think my carpet design is quite nice actually

2019:  Mum has actually gone back to work today after 5 weeks off following redundancy. She came home and started dinner but I took over the pasta as I prefer in unsinged! Clearly I was just copying mum in 1999 with the painting as she gets it all over the carpet when she paints.

January 12th – Antibiotics, Food and Gut Bacteria

 

1999:  We arrived for breakfast to discover the high chair ready and waiting.  I ate bacon, a sausage (which looked remarkably like poo, I picked it up and said so very, very loudly, at which point Mummy crawled under the table, I don’t know why, she can be so embarrassing at times) and a slice of toast and marmalade.   Trudged around in the freezing cold sleet for 30 minutes to find a GP surgery as I keep falling over and am now back on antibiotics for ear infection.  We went swimming and I did really well holding mummy’s hand up and down the swan slide and so eventually she let me have a go on my own.   I fell backwards; mummy caught my leg just in time.  She had a banged leg and I have a banged back. In the dining room tonight I wanted the “ man” (waiter) to pour my juice into my cup.  He obliged saying “hold it tight” as I held on to my cup.  All was going well until half way through when I dropped the whole lot over my trousers.  We had to go back to the room to change and I had hysterics thinking I was going to bed, but we went out again – dancing. I have won the hearts of all, nearly everyone here knows my name and I had several dances with several ladies tonight.  I wave to them all when I leave one room and say hello when I go in to another.  

2019: Well after a hectic week Zof took me out to dinner last night at Bella – our first date restaurant – love Italian and my table manners have improved, although I remain fairly clumsy so drink spillages are not that uncommon. I don’t swim much now but did train as a life guard when I was 17 and spent a year at Camber Sands and a year at Scratby lifeguarding until going on to other things. One of those things being club host and entertainer – still love to dance and be the centre of attention some nights, although other days and nights will see me hiding away from the world with anxiety and depression and I struggle to even place an order at MacDonalds. Things are much better since I met Zof though and we are now thinking of getting our own place. Crohns not great at the moment but I continue of the immune’s and mum is certain a lot of this is due to all the antibiotics I had as a child knocking out my healthy gut bacteria so keeps trying to feed me them too (lucky she’s away at the moment!)