1999: Into mum’s bed in the middle of the night complete with big Po, little Po and buzzing bee. Mum said there was no room left for her in the bed. I said, “Yes, is”, patted the bed and said, “see”. We slept until Mummy’s alarm went off at nine and I carried on snoozing for 5 until mummy arrived with milk and Tubbie cookies. Grandma collected me this morning to take me to see Daddy, I was a bit hesitant at first but tempted when I heard Father Christmas had been there too. I fell asleep in the car on the way home but woke up as soon as we got there. I showed mummy my new ride on tractor and trailer, computer, musical car, batman plane, pyjamas and £45.00! Mummy said tomorrow we would go and buy a batman to go in the car. I played nicely until 8.15 when mum gave me a tube of sweets, which I promptly lobbed, across the room in temper (and I’m not saying why). Next I knew I was in bed, despite me saying “I’m a good boy now”. Apparently that doesn’t count. Oh well, I’ll just have to be awkward and stay awake for the longest time possible. It was great; mum was really wound up by the time I went to sleep at 9.45. She should be grateful, I brought her a present back from Daddy’s a Cherished Teddy called Jerrod ‘don’t worry, it’s just another little bump in the road’.
2019: Back to the office job today. It didn’t go too bad but Id rather be riding that tractor! Tonight is the first time Zof and I have been home together all week and we had planned to make our Christmas dinner but couldn’t be arsed to wait for it all. Two big dominos, sides, wine and Gavin and Stacey coming up. All went down a treat.
#Kids #parents #family #CherishedTeddies #tractors #jobs #Christmas #Food #cooking #Pizza #Dominos
1999: I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking. Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming! By the time she got up – 45 minutes later – we were back on talking terms. I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause! Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out. I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15
2019: A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run, Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain. Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me to be waiting at the end with a long, stiff drink!
#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk
1999: Agal and I woke the whole household this morning with our apparently “loud” conversations. How rude! It’s just as well I don’t accuse mummy of this when she’s ‘natter, natter, natter’ with her friends! We stayed for toast and milk and then we drove home. Once there it was a case of antibiotics, wash, inhalers, teeth, pack bag and off to daddy’s. All my cousins were there and we had great fun in the garden and the pool. Grandma brought me home – sound asleep as usual, whereupon mummy must have transferred me to bed.
2019: Well there’s nothing like being at mums after a day of starvation and a colonoscopy. She went shopping and bought me heaps of treats yesterday, we had chinese for tea and I chilled with movies and ex box. Home today to tidy and get packing for our trip to Wales tomorrow and my mountain run for crohn’s and colitis. Have so far raised £345 on just giving and £230 at work. Thank you every one who is supporting me. If you want to keep up to date with my run up and down Snowdon on Saturday then follow me on Instagram @ chronically_livingcd
#toddlers #childhood #AbbyHardingMemorialFoundation (Agal) #parents #grandparents #family #adulthood #crohns #colitis #fundraising #instagram #Snowden #Wales #xbox #snacks #food #movies #chinese
1999: When mummy dropped me off at Edons she realised she had forgotten my medicine but she waved me goodbye regardless! 10 minutes later Edons phone rang and after this she went to the door to find my medicine had magicked onto her doorstep. Wow! Edon bought Jake and me a big balloon each at Asda today and we actually managed to get them home in one piece. Mummy picked me up at five – complete with a savaloy which I’d demolished before we got home. When we got there we had chips and pickled onions too. Think this is mums version of a posh two course meal! No sorry it’s going to be three – we made gingerbread men – slightly singed ones. Mum thought I was too busy washing up to notice but I’m not daft I know what that icing stuff is all about – disguise!
2019: Met Mum and mark at nan and Pa’s today for a BBQ with Uncle Terry, Aunty Dee and cousin Beau. Dee likes her BBQ burnt and I voiced to all that she’d be alright round Mums. Beau, Zof and I played footy in the garden ….. until the ball went over the fence (in my defence it is a low one). On our way home we dropped Terry at Lattitude festival for a gig and then headed home to bed.
#toddlers #mums #parents #family #grandparents #BBQ #cooking #baking #childhood #adulthood #football #Lattitude
1999: We didn’t get up until 7.30 but we still managed to get out for eight. I did well with training today (once I realised Edon was still not going to relent). Edon managed to keep me awake all day so that mummy could spend time with me tonight but I was a bit tired. A man came round to fix the smashed TV tonight (oops) and after this I had a bath and by 6.30 was soundo on the settee.
2019: Jump forward 20 years – pretty much the same really – apart from I didn’t pee everywhere, I had to go to work and the TV didn’t need fixing. Our lounge window, however, is a different matter – due to a youth and a football. Fancy doing something like that? Haha
#toddlers #childhood #adulthood #pottytraining #mums #tvrepairs #windowsandballs
1999: Slept until seven when the alarm went off. Didn’t sleep at all at Edons today and when mum picked me up it was reported that we had all been very hyper for the past hour and a half. I was very excitable. I played in the garden and distributed my sand everywhere but the sandpit. After tea I decide to paint the kitchen window with my bottle brush and soapy water. I think it looks lovely but mum reckons it might not look quite so lovely once it’s dried. Had a bath and fell asleep cuddled up to mum at 6.30
2019: Mum and Mark are still in Ireland. Kiegan is at theirs looking after the cat – Prince Eric Catona (How embarrassing). I went over for the day and we decided on a BBQ and were not going to let the rain stop us. My Aquarian mind put the double line up with the bbq cover pegged to it and stayed perfectly dry whilst the food sizzled
#toddlers #parents #ManchesterUtd #Family #BBQ #weather #starsigns #childsplay #cleaning #cats #cooking #EricCatona #
1999: We had to wait for the washing machine man again this morning before leaving for Edons. When we got there I presented mummy with my first handmade card that I had made at toddlers yesterday. I think she liked it, but I’m not that sure because her eyes looked a bit wet. When mummy picked me up she had the card in her car and said that she had also had it on her desk with her at work today. Edon reported that I have been a tyrant today (whatever that means!) and that at toddlers I hadn’t let anyone else play with the toys. Well, why should I? They’re all “mine” and it’s not my fault if the other children have a problem accepting this fact. Things didn’t get any better with mummy She thought it would be a nice relaxing change tonight to take a walk to the pub and have some chips and a “dink”. She eventually gave up on the walking, putting me in the buggy and stating that it was a change but the relaxation thing just wasn’t working out. In the pub garden, I made a discovery and I wanted to share my tip with other children. If you sit on the toy train ride and shout “mum” at the top of your voice at least 50 times, your mum may ignore you but the nice young lads give you 20p to put into the slot just to get some peace. The way I see it everyone’s a winner – they get a quiet peaceful drink, I get a ride and it hasn’t cost mum a penny!
2019: Haha. Can just imagine me continually shouting out. My stubbornness hasn’t abated. But to be fair, I wold also be one of the lads giving the child money for a ride! No pub tonight but another little truck I’ve learnt – dinner was ready and waiting for her royalty when she got home – Blue Cheese Brioche Burgers, complete with flowers and rose wine. Hmm. Not sure how the cheese is going to get on in my bowel. Think it might be in for a tough fight! They tasted good though
#toddlers #tantrums #washingmachines #repairs #childminders #toddlersclub #sharing #cooking #bluecheese #crohns #IBD #childhood #adulthood #pubgardens #screamingkids #childhood #adulthood #humour
1999: Got put back in my own bed 3 times tonight, but I won in the end. She’s just far too drowsy for a showdown in the middle of the night. It’s lovely and hot today. I played in the garden while mum made sandwiches and off we went to Marsh Farm. We arrived so early that I got to drive round the car park twice sat on mums lap. We spent 3 hours at the farm and had our photo taken on a cool postcard Machine. Once home, I played in the garden – shouting at Emma through our peep holes in the fence. We went to see Nanny and Pa and Pa has bought a cricket set for our holiday and a new bedtime story book for me (if I can get it off mum that is). We played in the garden and I shouted really loudly at a barking dog – “shut up dog”. Nanny says now she really knows how I get spoken to at home (although I must say mum has never called me ‘dog’). Mum assured her that it is only during times of severe trauma, but I would like to point out that this is her trauma and not mine – I’m absolutely fine
2019: Never was a good sleeper. Still struggle now. Mind whizzing at 100 mile an hour, or stomach cramps from wind and crohns! But once I’m asleep – it can be like waking a rock and apparently my snores are loud enough to shake a mountain. Talking of which, meeting at work today to discuss my fundraising event in support of my mount Snowdon run in July for @crohnsandcolitis.uk. Aviva are being very supportive and we are going to fund raise for 3 days at beginning of July including a cake sale. Mum offered to make some gluten and lactose free muffins but Mark pointed out I needed to sell these not give them away!
#toddlers #mums #parents #childhood #adulthood #crohns #colitis #IBD #Snowdon #fundraising #muffins #cakes #insomnia #MarshFarm #driving #mentalhealth #fundraising #Aviva #lactosefree #glutenfree #humour
1999: Same old routine this morning although I did grace mum with a small cuddle on the settee. Mummy picked me up at four from Edons and off we went to Agal’s party in Chelmsford. We had lots of yummy food and she had some wicked presents and lots of friends. I soaked everyone with a water pistol, opened one of Agal’s presents when no one was looking and blew out the candle on the cake. Well, it is my birthday, they just don’t realise. Mum didn’t seem very supportive of my theory. Agal didn’t seem to mind though – she was having a good time too. Mummy and I got home at eight and off to bed. It took me half an hour to fall asleep as I was busy planning my next birthday party.
2019: Ah. What fun we used to have with Abby. They moved to Ireland when I was 4 and we moved to Lincolnshire. Sadly we didn’t see Abby again as she died in 2005. Mum and Mark are off to see Karen and Mark and her siblings Kate and Finley in the next few weeks but money stops play for me. The last time I saw them was about 6 years ago when we went to the Abby Harding Memorial Foundation Ball in Tandragee and I also met up with John and Jacob from those 1999 years. For more information on theis wonderful foundation, supporting families of children with an acquired brain injury, you can find the Abby Harding memorial Foundation on face book
If you have suffered the loss of a child you can get support at https://www.lullabytrust.org.uk
Helpful books for children struggling with loss are:
Badgers Parting Gift (Mum and I read this when we lost Bomper)
Muddles, Puddles and Sunshine
#toddlers #birthdays #childhood #adulthood #parties #ireland #lincolnshire #bereavement #bereavementsupport #AbbyHardingMemorialFoundation #chelmsford #balls #reunions
1999: I got into mums bed at 3.30 saying “paint” and “dain”, only I know what I was dreaming about and I can’t remember now. I helped Mum hang the washing on the line and ended up playing in the mud which somehow landed on my trainers and on the lounge carpet. Oops! I forgot to take my trainers off. Think mum was a bit upset with that move! Nanny collected me from Edons, she made a picnic and we set off for Canvey with Bomper. What fun we had, I went on all the rides, paddled in the sea, had ice-cream and a picnic and I stayed dry, using the toilet when Nanny did. I fell asleep on the way home and slept for two hours. I had my pull-ups on and they were still dry when I woke up. I woke up just as mummy arrived and Pa and Teddy were there too. I’ve seen everyone today and couldn’t sleep until 9.30 – it’s been such an exciting day.
2019: Work today and then called in to see Mum and Mark for Fathers day. I didn’t take a card but wrote one on Facebook:
Happy Fathers day to the man who stepped up and did what another man couldn’t, takes balls and respect to be able to be involved with another persons child, and you sir have done very well (especially with all the lifts you used to give me when mum said no) I mean, you’re a massive pain sometimes but aren’t we all? Couldn’t think of anything without you
#family #mums #stepdads #Canvey Facebook #toddlers #childhood #adulthood #toilettraining