1999: I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking. Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming! By the time she got up – 45 minutes later – we were back on talking terms. I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause! Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out. I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15
2019: A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run, Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain. Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me to be waiting at the end with a long, stiff drink!
#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk
1999: Agal and I woke the whole household this morning with our apparently “loud” conversations. How rude! It’s just as well I don’t accuse mummy of this when she’s ‘natter, natter, natter’ with her friends! We stayed for toast and milk and then we drove home. Once there it was a case of antibiotics, wash, inhalers, teeth, pack bag and off to daddy’s. All my cousins were there and we had great fun in the garden and the pool. Grandma brought me home – sound asleep as usual, whereupon mummy must have transferred me to bed.
2019: Well there’s nothing like being at mums after a day of starvation and a colonoscopy. She went shopping and bought me heaps of treats yesterday, we had chinese for tea and I chilled with movies and ex box. Home today to tidy and get packing for our trip to Wales tomorrow and my mountain run for crohn’s and colitis. Have so far raised £345 on just giving and £230 at work. Thank you every one who is supporting me. If you want to keep up to date with my run up and down Snowdon on Saturday then follow me on Instagram @ chronically_livingcd
#toddlers #childhood #AbbyHardingMemorialFoundation (Agal) #parents #grandparents #family #adulthood #crohns #colitis #fundraising #instagram #Snowden #Wales #xbox #snacks #food #movies #chinese
1999: When mummy dropped me off at Edons she realised she had forgotten my medicine but she waved me goodbye regardless! 10 minutes later Edons phone rang and after this she went to the door to find my medicine had magicked onto her doorstep. Wow! Edon bought Jake and me a big balloon each at Asda today and we actually managed to get them home in one piece. Mummy picked me up at five – complete with a savaloy which I’d demolished before we got home. When we got there we had chips and pickled onions too. Think this is mums version of a posh two course meal! No sorry it’s going to be three – we made gingerbread men – slightly singed ones. Mum thought I was too busy washing up to notice but I’m not daft I know what that icing stuff is all about – disguise!
2019: Met Mum and mark at nan and Pa’s today for a BBQ with Uncle Terry, Aunty Dee and cousin Beau. Dee likes her BBQ burnt and I voiced to all that she’d be alright round Mums. Beau, Zof and I played footy in the garden ….. until the ball went over the fence (in my defence it is a low one). On our way home we dropped Terry at Lattitude festival for a gig and then headed home to bed.
#toddlers #mums #parents #family #grandparents #BBQ #cooking #baking #childhood #adulthood #football #Lattitude
1999: Nan and Pa stayed the night as mum has apparently gone out on the town. I’m sure that must mean something more than just standing over the town centre for the night, even she’s not mad enough to do that. Mum picked me up from Edon’s at midday and when we got home Pa was doing more work on the garden – building a nice new gate and bin store. Great more workmate stuff for me, but my helping hand seemed to make Pa work slower for some reason. The health visitor called this afternoon for my 2-year check. She asked mum lots of questions and measured my head. She said things looked fine – including the temper tantrums, which are apparently perfectly normal. Yippee! Permission from the professional to strop!!
2019: Thank goodness for Pa teaching me so much so young, as being handy has helped me over the last few months bringing the pennies in, even if it is exhausting. I don’t think anyone taught me about tantrums but they still seem to come naturally – especially if Im hungry or tired. Feed me NOW!
#toddlers #tantrums #building #woodwork #construction #nightsout #family #food #sleep #parents #grandparents
1999: I awoke in Aunty Eesa’s bed with mum next to me and the rest of the house was up by 6.15 – but they didn’t seem too impressed. Anyway I was saved later when Uncle Tony, who was away fishing, rang to say the clocks had gone forward an hour, so there! We played a bit this morning and aunty Eesa took us home at 10.30 or is it 11.30? We went to bed when we got in as mum is feeling poorly. Something to do with Martel, whoever that is! We snuggled up until 3.00! Mum looked slightly less green when we got up, but I’ve seen her looking better. I wanted to carry on sleeping really, but eventually gave in to mum’s persistence and went out to play in the garden. When we went to have a bath the water was really cold and mum had to boil up kettles of water to make it warm.
2019: Hmm. No issues with Martel on Mums first sleep over but I’m a little green from Jack as I was eventually swigging out of the bottle to try and numb my ankle pain. Swelling has gone down though and I have a bit more movement so will just continue to hobble until it heals. Don’t really want to be travelling to Budapest with plaster on anyhow. Although assisted flying is quite good – I had this flying back from Ireland once with a broken toe. The first of many toe breaks. My big toes are now so numb I’m continually stubbing them as cannot feel them!
#fishing #alcohol #britishsummertime #alchohol #martel #JD #breaks #injuries #sleepovers #budapest
1999: Was full of fun this morning- groomed spot the dog, wore mums slippers and basically just did silly things. When we went out to the car we saw there was a man in a yellow box going up in the air. Mum said he was mending the lights. I WANT A GO. Life’s just so unfair. On the way to Edons I saw a man on his motorbike, I waved and he waved back! I’m so well known around town. Edon took me to the park but it was so muddy we all started sinking and I actually fell down a hole and ended up sinking to my hips! Edon took us to the Village hall park instead whereupon, I decided to fall off the steps to the slide, but I was okay. When mum collected me, I had no trousers on and none to put on, as they were all muddy. I wanted to go to Nanny’s but she was out. We went to Uncle Teddy’s instead, where we bumped in to Nan! We stayed for a drink and then headed to Nan’s for tea. I didn’t want any though. When I went to get into the car, I realised Nan had disappeared. I wasn’t having that. I strode back to the front door. ‘Nan’. ‘Nan’. ‘Nan’. She re-appeared with a current bun. Yum.
2019: Worked up an appetite today. Went over to mums to collect table and chairs, tv and ex box (must have been tired to go without them yesterday!) Mum and Mark came back with us and we cooked a very late brunch for us in our own home. Love this grown up stuff – might change my mind once the bills role in though!
1999: Mum tried to fob me off this morning by putting me in her bed, with my milk, to drink alone but I had other ideas. I looked at her really really sweetly, patted the bed beside me and said “ Mum”. It worked like a charm and she obliged (for a whole 5 minutes). Went to Edons and when mum picked me up tonight she bought me a packet of crisps and I was on my best behaviour getting into the car extremely nicely, with no fuss. We called in to see Nanny and Pa, I think it was because I kept saying “Nan, Nan, Nan” for the first 3 minutes of the journey. We ended up staying for tea and Uncle Eddy called in as well. I’m doing well for attention this week. Nan has bought me a new stool, which I was chuffed with, until Pa and Mummy tried to confuse me. I mean I knew it was a stool, it was perfectly obvious to me, but they thought it was a table. What planet are they on? You know us kids would learn a lot faster if we weren’t hindered by adults.
2019: Haven’t managed to get back to rugby but went to watch U11 rugby today at Wymondham and then drove to Acle to meet mum who brought my paperwork half way. Mum to the rescue again! She cant complain too much as I take after her!