July 26th – Good Good Good, Good Donations

1999:  I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking.  Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming!  By the time she got up – 45 minutes later – we were back on talking terms.  I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause!  Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out.  I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15

2019:  A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run,  Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain.  Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me  to be waiting at the end with a long, stiff drink!

#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk

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July 25th -It’s Great to Eat Again

1999:  Agal and I woke the whole household this morning with our apparently “loud” conversations.  How rude!  It’s just as well I don’t accuse mummy of this when she’s ‘natter, natter, natter’ with her friends!  We stayed for toast and milk and then we drove home.  Once there it was a case of antibiotics, wash, inhalers, teeth, pack bag and off to daddy’s.  All my cousins were there and we had great fun in the garden and the pool.  Grandma brought me home – sound asleep as usual, whereupon mummy must have transferred me to bed.

2019: Well there’s nothing like being at mums after a day of starvation and a colonoscopy. She went shopping and bought me heaps of treats yesterday, we had chinese for tea and I chilled with movies and ex box. Home today to tidy and get packing for our trip to Wales tomorrow and my mountain run for crohn’s and colitis. Have so far raised £345 on just giving and £230 at work.  Thank you every one who is supporting me. If you want to keep up to date with my run up and down Snowdon on Saturday then follow me on Instagram @ chronically_livingcd

#toddlers #childhood #AbbyHardingMemorialFoundation (Agal) #parents #grandparents #family #adulthood #crohns #colitis #fundraising #instagram #Snowden #Wales #xbox #snacks #food #movies #chinese

 

July 21st – Meals Al Fresco

1999:  When mummy dropped me off at Edons she realised she had forgotten my medicine but she waved me goodbye regardless!  10 minutes later Edons phone rang and after this she went to the door to find my medicine had magicked onto her doorstep.  Wow!  Edon bought Jake and me a big balloon each at Asda today and we actually managed to get them home in one piece. Mummy picked me up at five – complete with a savaloy which I’d demolished before we got home.  When we got there we had chips and pickled onions too.  Think this is mums version of a posh two course meal!  No sorry it’s going to be three – we made gingerbread men – slightly singed ones.  Mum thought I was too busy washing up to notice but I’m not daft I know what that icing stuff is all about – disguise! 

2019: Met Mum and mark at nan and Pa’s today for a BBQ with Uncle Terry, Aunty Dee and cousin  Beau.  Dee likes her BBQ burnt and I voiced to all that she’d be alright round Mums. Beau, Zof and I played footy in the garden ….. until the ball went over the fence (in my defence it is a low one). On our way home we dropped Terry at Lattitude festival for a gig and then headed home to bed.

 #toddlers #mums #parents #family #grandparents #BBQ #cooking #baking #childhood #adulthood #football #Lattitude

April 9th – Handy Man Tantrums

1999:  Nan and Pa stayed the night as mum has apparently gone out on the town. I’m sure that must mean something more than just standing over the town centre for the night, even she’s not mad enough to do that.  Mum picked me up from Edon’s at midday and when we got home Pa was doing more work on the garden – building a nice new gate and bin store.  Great more workmate stuff for me, but my helping hand seemed to make Pa work slower for some reason.  The health visitor called this afternoon for my 2-year check.  She asked mum lots of questions and measured my head.  She said things looked fine – including the temper tantrums, which are apparently perfectly normal.  Yippee! Permission from the professional to strop!! 

2019: Thank goodness for Pa teaching me so much so young, as being handy has helped me over the last few months bringing the pennies in, even if it is exhausting. I don’t think anyone taught me about tantrums but they still seem to come naturally – especially if Im hungry or tired.  Feed me NOW!

#toddlers #tantrums #building #woodwork #construction #nightsout #family #food #sleep #parents #grandparents

March 28th – Summer Time Sleepovers (with Alcohol)

1999: I awoke in Aunty Eesa’s bed with mum next to me and the rest of the house was up by 6.15 – but they didn’t seem too impressed.  Anyway I was saved later when Uncle Tony, who was away fishing, rang to say the clocks had gone forward an hour, so there!  We played a bit this morning and aunty Eesa took us home at 10.30 or is it 11.30?  We went to bed when we got in as mum is feeling poorly.  Something to do with Martel, whoever that is! We snuggled up until 3.00!  Mum looked slightly less green when we got up, but I’ve seen her looking better.  I wanted to carry on sleeping really, but eventually gave in to mum’s persistence and went out to play in the garden.  When we went to have a bath the water was really cold and mum had to boil up kettles of water to make it warm. 

2019: Hmm. No issues with Martel on Mums first sleep over but I’m a little green from Jack as I was eventually swigging out of the bottle to try and numb my ankle pain. Swelling has gone down though and I have a bit more movement so will just continue to hobble until it heals. Don’t really want to be travelling to Budapest with plaster on anyhow. Although assisted flying is quite good – I had this flying back from Ireland once with a broken toe. The first of many toe breaks. My big toes are now so numb I’m continually stubbing them as cannot feel them!

#fishing #alcohol #britishsummertime #alchohol #martel #JD #breaks #injuries #sleepovers #budapest

March 17th – Expensive Appetites

1999:  Was full of fun this morning- groomed spot the dog, wore mums slippers and basically just did silly things.  When we went out to the car we saw there was a man in a yellow box going up in the air.  Mum said he was mending the lights. I WANT A GO.  Life’s just so unfair.  On the way to Edons I saw a man on his motorbike, I waved and he waved back! I’m so well known around town.  Edon took me to the park but it was so muddy we all started sinking and I actually fell down a hole and ended up sinking to my hips!  Edon took us to the Village hall park instead whereupon, I decided to fall off the steps to the slide, but I was okay. When mum collected me, I had no trousers on and none to put on, as they were all muddy.  I wanted to go to Nanny’s but she was out. We went to Uncle Teddy’s instead, where we bumped in to Nan!  We stayed for a drink and then headed to Nan’s for tea.  I didn’t want any though.  When I went to get into the car, I realised Nan had disappeared.  I wasn’t having that.  I strode back to the front door.  ‘Nan’. ‘Nan’.  ‘Nan’. She re-appeared with a current bun.  Yum.  

2019: Worked up an appetite today. Went over to mums to collect table and chairs, tv and ex box (must have been tired to go without them yesterday!) Mum and Mark came back with us and we cooked a very late brunch for us in our own home. Love this grown up stuff – might change my mind once the bills role in though!

 

 

March 10th Adults – hinderance and help

1999:  Mum tried to fob me off this morning by putting me in her bed, with my milk, to drink alone but I had other ideas.  I looked at her really really sweetly, patted the bed beside me and said “ Mum”.  It worked like a charm and she obliged (for a whole 5 minutes). Went to Edons and when mum picked me up tonight she bought me a packet of crisps and I was on my best behaviour getting into the car extremely nicely, with no fuss.  We called in to see Nanny and Pa, I think it was because I kept saying “Nan, Nan, Nan” for the first 3 minutes of the journey.  We ended up staying for tea and Uncle Eddy called in as well.  I’m doing well for attention this week.  Nan has bought me a new stool, which I was chuffed with, until Pa and Mummy tried to confuse me.  I mean I knew it was a stool, it was perfectly obvious to me, but they thought it was a table.  What planet are they on?  You know us kids would learn a lot faster if we weren’t hindered by adults.

2019: Haven’t managed to get back to rugby but went to watch U11 rugby today at Wymondham and then drove to Acle to meet mum who brought my paperwork half way. Mum to the rescue again! She cant complain too much as I take after her!

#toddlers #growingup

rugby #

March 1st – Cutting Teeth

1999: Spent the day at Edon’s until five when mum took me to Nan’s for tea.  I was really pleased as mum said we were going but I didn’t quite believe her until we rounded the corner of her road and then I got really excited shouting ‘Nan, Nan, Nan’.  Uncle Eddy and Pa were there too!  After 20 minutes mum disappeared.  Charming – more quality time!  She returned an hour later in a new shiny red car – I was very excited and had a little go in the driver’s seat. We went home in the NEW car, which is actually 3 years old, but it’s all ours!  I had a bath, complete with hair wash (I have managed to avoid it for a week now) and I wasn’t too impressed with Mother pouring all that water over my head.  Afterwards I found the lion cake and decided to demolish it.  Mum discovered another tooth coming = 10 at the bottom and eight on top.

2019:  Home alone today and tonight as Mum and Mark have gone to the theatre and Zof is out with friends. Low, low, low day – mum always knows – she text me to check I was in a good place before buggering off out as she put it. I’m ok. Well ok to be left on my own. She rang and faced timed me a couple of times too. I sometimes feel as if I’m cutting teeth all over again in this adult world, but wonder if it was actually any less painful back then …..

#teething #family #grandparents #toddlers #adults #work #depression #demotivation

 

February 27th Birthday Celebrations

1999:  Up at 6.30 – come on mum – it’s the weekend – let’s party.  She doesn’t seem too enthusiastic.  I guess she is getting on a bit now – 34 today.  She sang happy birthday to herself, but I wanted it to be to ‘me’.  We had a cup of tea, got dressed and then went to Nanny and Pa’s.  Mum had lots of pressies and I wanted to open them all.  I had bought her a lovely green purse and she had Lion cake (which I blew the candles out on several times).  Mummy went home to get ready and then she went off to London for the day and I stayed with Nanny and Pa.  I went to the shops with Pa and we bought some yummy cakes. We made peaches and jelly for mum’s tea tomorrow (well it is mine and Pa’s favourite!)  Pa bought me a Thomas the Tank Engine magazine and I had a generally spoilt and pampered day.  Well I do have to work hard living with my mum, so it’s nice to have a break every now and again.  Nanny and Pa took me home and although mummy’s, Bim’s and Eesa’s cars were there, there was no sign of anyone.  I went to bed and I presume Nanny and Pa stayed with me. 

2019: Mum always takes her birthday off from work and I met her for a Pizza Hut buffet at  lunch time which is one advantage of being unemployed. This afternoon we got the fire going and watched the films I wanted to watch on Sky Cinema (20 years may have passed but I still seem to have a handle on things!) Zof came over tonight and we gave mum her all her pressies – lots of organic stuff (as she’s gone organic mad) and a companion set for fire place. Indian take away for tea which was lush. Oh. And I had to trouble mum to fill out a form for guarantor for flat ……

#parents #growing up #birthdays #celebrations #unemployment #houserenting #presents #girlfriends #cakes

 

February 15th – Shoes and Fire Engines

1999:  Awoke at 3 and mum had to come up and get me as she is sleeping downstairs on the futon – far too many paint fumes in her room apparently!  We snuggled down on the settee and got up at 7 following at least 6 snoozes!  It was great, I could sit up in ‘bed’, drink milk and watch Teletubbies on TV.  After Edons mum and I went to the dentist for my first check up, I made sure I had crisps and juice first though for extra impact!  I happily opened my mouth wide and showed the dentist my crisp sodden teeth.  It could have been worse – mum usually has gooey coated sweetie mess on hers!  We went to the carpet shop to pick up my new carpet, but mum lost me and eventually found me crawling along the windowsill behind piles of carpet.  What?  I just wanted to try a bit of window modelling; after all she does enough window shopping.  As we were in town we just had to go in the new shoe shop (mum has an obsession), it was very posh with lots of lovely glass shelves.  Still, a few sessions of throwing mum’s car keys at them and the shoe shopping was soon over.  What’s the matter with her?  Think she must be having shoe withdrawals!   

2019: Mums shoe obsession! As I got older I used to have to drag her away from shoe shops with her saying “you can never have too many shoes”. I also said this about fire engines (toy ones clearly). Although mum did have to drive past the fire station every day so I could see if Dennis was in or out. We had a shock one day when Dennis had gone and Sabre had taken his place.  I still think about doing this as a job but nothing locally at the moment. When I was about 7, Terry was in the last series of Londons Burning. I watched it over and over on video but was very disappointed when I found out he was not really a fireman – just an actor and comedian apparently. Mind you, Mum and I did manage to get in a scene, walking up pier hill in Southend when a whale apparently needed rescuing there. My fire engine collection has now gone but my shoe collection is growing!

#shoes #shopping #fireengines #londonsburning #southend #pierhill #toddlers #childhood #adulthood