November 6th – Santa For Christmas?

1999:  Mummy had her nails done again his morning, which was all a bit boring.  When she was finished we headed straight for Aunty Eesa’s as I’d decided I didn’t want to go swimming.  We had lunch and all played in the garden which was great fun.  The only problem today is that somehow, someone keeps wetting my trousers.  We went to Asda where we saw Nanny demonstrating Christmas cake – yum, yum.  Later, once home, Nanny called round for a cup of tea and afterwards mummy and I had some pasta and then my bath.  I fell asleep on the settee just as a lady called Leah came in and the next I knew it was 1.30, I was in my bed, but rudely awoken by loud voices downstairs.  Bloomin’ adults, I wish they’d learn to keep the noise down.  I bet mum’s been out with that Martel guy again!  Anyway, I was allowed down for my bottle of milk and then back to bed and sleep.

2019: Infusion day. 3rd loading dose in 5 weeks and I have gained another 5 kilo = 98 kg! Not sure if this is the stopping smoking and craving food or the infusions but perhaps I could get a part time job as Santa this year?! Still its better than being underweight and looking like a skeleton. Generally I’m feeling good, just tired from the loading doses, but I think I have found what is good for me treatment wise

#crohns #children #parents #granparents #christmas #infiximab #infusions #pottytraining 

January 27th – I want Everything but I could do without the Crohn’s

1999:  Pa’s birthday today and Bompers too.  Mummy was already dressed before I got up this morning as I had a lie in until 7.45.  Why don’t I do this at weekends when mum could lie in?  Well there just wouldn’t be any fun in that, now would there? I do have some heart though; I found mums silk roses on her windowsill, picked them up and presented them to her.  She said they were lovely and that they smelt beautiful too.  They’re pretend mother, not real.  Honestly!  Oh well best not disappoint her, I’ll play along with her, let me smell ‘Mm.  Lovely’.  What a Wally!  A little later I called mummy into my bedroom and she came in to find me looking very pleased with myself.  I had stuck the remaining stickers for my potty training chart all over the wardrobe and they were stuck hard and fast.  She told me I was very clever but perhaps next time they should go on the chart.  Tip of the month – if you want to avoid getting in trouble with your mum always look proud and pleased with what you have done and they won’t have the heart to tell you off.  After Edons tonight, mummy and I went to the card shop to get birthday cards for Pa and Bomper, but I found it far more fun to wreck the joint whilst she was distracted rather than to look for cards. We arrived at Nanny and Pa’s and I gave Pa his present and then took it straight back off him and unwrapped it.  Mm, very nice, a new T-shirt, it looks a bit on the big side for me though mum.  What do you mean it’s for Pa; everyone knows presents are for kids.  Aren’t they?  Oh well, the cake then? Pa’s great, he let me sit on his lap and blow out the candles ‘again’ and ‘again’.

2019:  Great Grandad Bomper died when I was 6 at the age of 86.  He is still with me wherever I go and often flickers lights on and off around me! Zof and I were hanging in London this morning and called in to see Uncle Terry, Aunty Dee  and cousin Beau at Epping Ice rink and had a little skate eventually getting home at 7 pm.

Whilst we were away, with me permission, mum had changed my room round (due to a condensation and mould problem which is attacking the wallpaper and needing to get the bed off of said wall) and sorted all my draws etc out. Sprung – I have a full packet of immunosuppressants and a prescription in my draw! Thing is I am very reluctant to take them due to nearly dying of sepsis Christmas before last due to a fungi entering my blood through my sinuses as I was so immune supressed

January 7th – Chocolate, Nuts and Crohn’s

1999:  Slept the whole night in my own bed, I must be slacking, will have to do better than that tonight. Before we left for Edon’s today, I spied a big tube of Smarties, which someone had apparently dropped round for me last night.  What a treat, I’m not usually allowed, but I’ve seen them now mum – you should have hidden them sooner (I mean you had all night).  Meanie head said that I couldn’t have them for breakfast, so I decided to take them with me.  I put them on the dashboard and guzzled my drink.  Mum tried all sorts of distractions, but I know her game, she was hoping I would forget they were there.  Is she stupid?  I mean she’d remember her sweeties so what makes her think I wouldn’t remember mine?  I humoured her, responded to her distractive ramblings and once at Edon’s got out of the car, Smarties tightly clenched in hand.

2019: Well mums away in Tenerife and I’ve been working hard all day and grabbing what I can to snack on. To be fair, I love my sweets still, but know chocolate really effects my Chron’s so I tend to avoid this. Along with spicy food and nuts – so what did mum put in my Christmas sack – Wasabi bloomin nuts!

#ditzy #humour #toddlers #childhood #adulthood #chocolate #food #crohns