July 28th – Vocalising Celebrations

1999   Impressed mum as I came into her room this morning and said “can I have” but needed help with the “a drink please” bit.  Mum thought I was very clever and said it was far nicer than the “dink” I usually holler in her ear.  That’s as may be, but it’s much harder work if you ask me.  I mean, why use all those words when you can get the same result just using one?  Adults!  I’ll never understand them.  Found the camera on the lounge floor this morning and   took several photos of the telly, the carpet, the curtain, my foot etc.  Should look good when the films developed (nice surprise for mum anyhow). Went to Edons and then Nanny’s today.  The sun was shining and I played in the garden all day. Nanny gave me a new shirt from Uncle Teddy – a Southend United one!   I was very tired tonight which resulted in tantrums; largely because mummy pulled the plug out of the bath just because I slapped her!  I was back home and in bed by seven and asleep two minutes later.

2019: Long drive back from Wales to Beccles today, made worse by an hour and a half jam on the A14. Legs are pretty wobbly from yesterdays run but I’m happy I did the run and am also celebrating one year with Zof today! She has stuck by me (even holding my hand in hospital after surgery and looking after me when I was discharged at the beginning of July when we were just friends). She has inspired me, encouraged me, helped me,  filled me with confidence and let me be me. Looking forwards to many more years together.

#toddlers #childhood #adulthood #vocabulary #childtalk #photography #sunshine #footbal #southendutd #tantrums  #Beccles #Wales #Trafficjams #girlfriend #friends #crohns #hemicolectomy #mentalhealth

July 26th – Good Good Good, Good Donations

1999:  I slept right through until half four this morning, when I woke up in my own bed and was alive and kicking.  Mum still wanted to sleep and after several disruptions to her shut eye she shut her bedroom door in my face. Charming!  By the time she got up – 45 minutes later – we were back on talking terms.  I jumped in mum’s water and drank all her tea (except 3 mouthfuls which she’d managed to swig before I got my mitts on it – gonna have to speed up my tactics). Went to Edons and when mum picked me up she had a tricycle for me which one of her staff had kindly donated to our cause!  Mummy let me ride it out front for a while and then we went round to the back where I found her a lovely feather (the first of her collection) and it wasn’t long before the hose pipe came out.  I surprised mum by counting to twelve in the bath tonight, following which we both fell asleep on my bed at 7.15

2019:  A long drive from Lowestoft in Suffolk in Bala to Wales ready for my Snowdon run,  Staying in the home of a musician through Airb&b. The alarm is set for 4.40am. The day has come round so quickly and I am soo literally nervous and I have no idea why. I have absolutely smashed my fundraising target which currently stands at at £685 towards Crohns and Colitis UK, and now to absolutely smash this mountain.  Hopefully gonna be setting off at 6 am tomorrow and provided all goes well i’ll be returning at some point before 10 am. This is more nerve racking than when I was waiting to go for surgery. Time to show the world that us people with chronic, invisible illness are the most strongest physically and mentally set people! I’m not just doing this for me, but my friends, family and everyone in the invisible illness community. Thank yo to everyone who donated and thank you to my family who have come along with me  to be waiting at the end with a long, stiff drink!

#toddlers #childhood #mums #childminders #adulthood #crohns #crohnswarrior #notalldisabilitiesarevisible #ibs #crohnsdisease #mountain #snowdon#wales #snowdonia #trek #family #crohnsandcolitis #fundraising #lowestoft #suffolk

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July 25th -It’s Great to Eat Again

1999:  Agal and I woke the whole household this morning with our apparently “loud” conversations.  How rude!  It’s just as well I don’t accuse mummy of this when she’s ‘natter, natter, natter’ with her friends!  We stayed for toast and milk and then we drove home.  Once there it was a case of antibiotics, wash, inhalers, teeth, pack bag and off to daddy’s.  All my cousins were there and we had great fun in the garden and the pool.  Grandma brought me home – sound asleep as usual, whereupon mummy must have transferred me to bed.

2019: Well there’s nothing like being at mums after a day of starvation and a colonoscopy. She went shopping and bought me heaps of treats yesterday, we had chinese for tea and I chilled with movies and ex box. Home today to tidy and get packing for our trip to Wales tomorrow and my mountain run for crohn’s and colitis. Have so far raised £345 on just giving and £230 at work.  Thank you every one who is supporting me. If you want to keep up to date with my run up and down Snowdon on Saturday then follow me on Instagram @ chronically_livingcd

#toddlers #childhood #AbbyHardingMemorialFoundation (Agal) #parents #grandparents #family #adulthood #crohns #colitis #fundraising #instagram #Snowden #Wales #xbox #snacks #food #movies #chinese

 

July 23rd – Food Glorious Food

1999: Up for the day at five a.m.  Mum snoozed on the settee, between requests for drinks, wees and videos! Had a sleep today at Edons, which wasn’t really surprising considering my early start and all my hard playing.  Once home again tonight I played in my car and painted it again, along with myself.  Ate all my tea, “ish ingers”, Alphabites, spaghetti and crisps.  I had to have a bath afterwards due to spaghetti sauce and paint!  Mum has continued with elocution lessons today; trying to get me to say “I am” instead of “ham” and I have now progressed to “high ham”. 

2019: What Id give for fish fingers and alphabites right now. Even the High Ham sounds good. Bowel prep today so all I have is soup and laxatives. Went to mums tonight and was very Hangry so a trip ensued to Tescos for Jellies and soda. Cant wait until tomorrow when I can stuff my face!

#toddlers #childminders #mums #food #cooking #English #Language #childhood #adulthood #crohns #IBD #Colitis #bowelprep #Tescos #Jelly

 

July 21st – Meals Al Fresco

1999:  When mummy dropped me off at Edons she realised she had forgotten my medicine but she waved me goodbye regardless!  10 minutes later Edons phone rang and after this she went to the door to find my medicine had magicked onto her doorstep.  Wow!  Edon bought Jake and me a big balloon each at Asda today and we actually managed to get them home in one piece. Mummy picked me up at five – complete with a savaloy which I’d demolished before we got home.  When we got there we had chips and pickled onions too.  Think this is mums version of a posh two course meal!  No sorry it’s going to be three – we made gingerbread men – slightly singed ones.  Mum thought I was too busy washing up to notice but I’m not daft I know what that icing stuff is all about – disguise! 

2019: Met Mum and mark at nan and Pa’s today for a BBQ with Uncle Terry, Aunty Dee and cousin  Beau.  Dee likes her BBQ burnt and I voiced to all that she’d be alright round Mums. Beau, Zof and I played footy in the garden ….. until the ball went over the fence (in my defence it is a low one). On our way home we dropped Terry at Lattitude festival for a gig and then headed home to bed.

 #toddlers #mums #parents #family #grandparents #BBQ #cooking #baking #childhood #adulthood #football #Lattitude

July 13th – Kids Have a Smashing Time

1999: We didn’t get up until 7.30 but we still managed to get out for eight.  I did well with training today (once I realised Edon was still not going to relent).  Edon managed to keep me awake all day so that mummy could spend time with me tonight but I was a bit tired.  A man came round to fix the smashed TV tonight (oops) and after this I had a bath and by 6.30 was soundo on the settee.

2019:  Jump forward 20 years – pretty much the same really – apart from I didn’t pee everywhere, I had to go to work and the TV didn’t need fixing. Our lounge window, however, is a different matter – due to a youth and a football. Fancy doing something like that? Haha

#toddlers #childhood #adulthood #pottytraining #mums #tvrepairs #windowsandballs

June 19th – Insomnia and Snores to move Mountains

1999: Got put back in my own bed 3 times tonight, but I won in the end.  She’s just far too drowsy for a showdown in the middle of the night.  It’s lovely and hot today.  I played in the garden while mum made sandwiches and off we went to Marsh Farm.  We arrived so early that I got to drive round the car park twice sat on mums lap.  We spent 3 hours at the farm and had our photo taken on a cool postcard Machine. Once home, I played in the garden – shouting at Emma through our peep holes in the fence. We went to see Nanny and Pa and  Pa has bought a cricket set for our holiday and a new bedtime story book for me (if I can get it off mum that is).  We played in the garden and I shouted really loudly at a barking dog – “shut up dog”.  Nanny says now she really knows how I get spoken to at home (although I must say mum has never called me ‘dog’). Mum assured her that it is only during times of severe trauma, but I would like to point out that this is her trauma and not mine – I’m absolutely fine

2019: Never was a good sleeper. Still struggle now. Mind whizzing at 100 mile an hour, or stomach cramps from wind and crohns! But once I’m asleep – it can be like waking a rock and apparently my snores are loud enough to shake a mountain. Talking of which, meeting at work today to discuss my fundraising event in support of my mount Snowdon run in July for @crohnsandcolitis.uk.  Aviva are being very supportive and we are going to fund raise for 3 days at beginning of July including a cake sale. Mum offered to make some gluten and lactose free muffins but Mark pointed out I needed to sell these not give them away!

#toddlers #mums #parents #childhood #adulthood #crohns #colitis #IBD #Snowdon #fundraising #muffins #cakes #insomnia #MarshFarm #driving #mentalhealth #fundraising #Aviva #lactosefree #glutenfree #humour