June 19th – Insomnia and Snores to move Mountains

1999: Got put back in my own bed 3 times tonight, but I won in the end.  She’s just far too drowsy for a showdown in the middle of the night.  It’s lovely and hot today.  I played in the garden while mum made sandwiches and off we went to Marsh Farm.  We arrived so early that I got to drive round the car park twice sat on mums lap.  We spent 3 hours at the farm and had our photo taken on a cool postcard Machine. Once home, I played in the garden – shouting at Emma through our peep holes in the fence. We went to see Nanny and Pa and  Pa has bought a cricket set for our holiday and a new bedtime story book for me (if I can get it off mum that is).  We played in the garden and I shouted really loudly at a barking dog – “shut up dog”.  Nanny says now she really knows how I get spoken to at home (although I must say mum has never called me ‘dog’). Mum assured her that it is only during times of severe trauma, but I would like to point out that this is her trauma and not mine – I’m absolutely fine

2019: Never was a good sleeper. Still struggle now. Mind whizzing at 100 mile an hour, or stomach cramps from wind and crohns! But once I’m asleep – it can be like waking a rock and apparently my snores are loud enough to shake a mountain. Talking of which, meeting at work today to discuss my fundraising event in support of my mount Snowdon run in July for @crohnsandcolitis.uk.  Aviva are being very supportive and we are going to fund raise for 3 days at beginning of July including a cake sale. Mum offered to make some gluten and lactose free muffins but Mark pointed out I needed to sell these not give them away!

#toddlers #mums #parents #childhood #adulthood #crohns #colitis #IBD #Snowdon #fundraising #muffins #cakes #insomnia #MarshFarm #driving #mentalhealth #fundraising #Aviva #lactosefree #glutenfree #humour

 

April 4th – Eggs, Sausages and Crohn’s

1999: – Easter Sunday – More eggs!  Mum wanted to lie in (again), so she put my potty out, the telly on, made everywhere safe and left me to get on with it – which I did with a vengeance.  I totally trashed the place; it was great fun, especially with no one around to keep saying that horrible ‘no’ word.  When mum eventually got up we went into the garden, I played and Mum was weeding and now the beds look really bare – just mud everywhere.  Later I watched mum trying to dig up an old azalea in the front garden, which was quite funny.  She put the spade under the plant and was sitting on the handle.  It took forever to budge, but eventually she won (she always does).  We had a bath and put shorts and T-shirt on as it had gotten really hot.  We went round to see Nan and Pa and by the time we got there the sun had gone in and mum had to go back home and get some warmer clothes

2019:  Wish it had cooled today as I back to work in the heat. I like being outside but looking forward to starting at Aviva as office work wont take such a toll on my body. Had a slightly dodgy sausage tonight which bought on D&V and a Crohn’s flare. Bloomin ulcers. Not good

#crohn’s #easter #eggs #chocolate #weather #gardening #work #eating #aviva

March 11th Diversifying Chronic Illness

1999:  On the way to Edons we had to stop at the post office to collect a package for mum – her bouquet of flowers for Mothers day – I’m just so thoughtful, and it’s amazing what a young chap can arrange these days. Tonight mum asked if I wanted anything to eat, I said no but she made us noodles anyway.  Why does she bother to ask?  I had three mouthfuls just to keep her happy.  Whilst mum was busy eating, I went into the kitchen and decided to play with the fridge.  It seemed like a good idea to begin with, but then I poked myself under the eye with the shelf rim. I wouldn’t let mum put anything cold on it, even after she’d put a cold cloth on herself (why she should think that would help my eye I don’t know).  We went upstairs, before my milk, to change my bum and put my pyjamas on, but I wasn’t too keen, and let mum know with a swift head butt to the chest.  This seemed to change her mind again and I ended up in bed!  I did get my milk, a teddy, a cuddle and a ‘moonbeams’ story – well sort of, I’ve started diversifying and I tell mum stories too.  My moonbeams is a wind up toy that shines pictures on the ceiling, one of these being a plane. Mum has made up a story to go with it but sometimes I just shoot the plane out of the sky.  Mum says I’m such a caring, placid child but I don’t quite know where she gets that from. 

2019:  Arrived at Aviva for 9am and smashed the ball out of the park. I’ve got the job but don’t start until 21st April so that might delay things with the flat a bit as only one wage coming in for the next two months. I’ll keep trying with the agencies for now. Home tonight and heavily into Afflicted on Netflix. Told mum I think her Fibromyalgia is actually Lymes disease – spookily this was she has also been thinking

#moonbeams #stories #toddlers #growingup #mothersday #flowers #aviva #interview #job