July 14th – Get out of the Dog House Day

1999: Up bright and early at six.  I helped myself to two bags of crisps which mum happily opened from the depths of her bed and in a drowsy state.  It’s great being up at this time because mum really doesn’t know what she’s doing – I swear she’ll not remember when she wakes up (I hope not anyway).  Mum got up at 7.30 to a neat and tidy lounge and a potty full to the brim.  I jumped in her bath, then dressed and off to Edons.  Mum was really impressed when she picked me up as I haven’t had a nappy on today and I was still in the same clothes I left home in this morning.  I had quite a hyper day and when we got home I went straight to the settee and watched Pat.  I asked for my milk which I drank while mum cooked tea but I never did find out what was for tea as mum apparently lifted me to bed at 5.45!

2019:  Apparently today is ‘Get out of the Dog House Day’. I know this as Argos have this blazoned everywhere and a single blow up mattresses on special offer. Asda on the other hand have free ice bucket with packs of Desperados and Sol Beer which are just £4. Some great bargains. But fortunately Zof and I can do our own thing whilst still being together or simply sit in our flat alone, eating snacks and minding our own business – both of which are sic. I’m just in from work, Zofs cooking tea and Mums booked the B&B for Snowdon,  so all is good. Well, so long as the Lion in Gwytherin confirms the booking

Adenum: England won the cricket World Cup for the first time ever! 241 runs each. 15 runs each super over. What were the odds?

#toddlers #childhood #adulthood #snacks #munchies #pottytraining #argos #asda #beer #icebuckets #wales #Gswytherin #cricket #England #world cup

July 13th – Kids Have a Smashing Time

1999: We didn’t get up until 7.30 but we still managed to get out for eight.  I did well with training today (once I realised Edon was still not going to relent).  Edon managed to keep me awake all day so that mummy could spend time with me tonight but I was a bit tired.  A man came round to fix the smashed TV tonight (oops) and after this I had a bath and by 6.30 was soundo on the settee.

2019:  Jump forward 20 years – pretty much the same really – apart from I didn’t pee everywhere, I had to go to work and the TV didn’t need fixing. Our lounge window, however, is a different matter – due to a youth and a football. Fancy doing something like that? Haha

#toddlers #childhood #adulthood #pottytraining #mums #tvrepairs #windowsandballs

July 12th -15 Days Until Snowdon Challenge

1999: Back to Edons today although it was all a bit of a rush.  I decided to poo and wee everywhere today in a bid to get my lazy nappies back – but Edon stuck with it.  When mum collected me we went to Aunty Karens and we all went over the park with Agal.  We had luncheables in the park and all went well until I weed all over the park equipment, and all over mum, and then for some strange reason, mum decided we were leaving which I thought was very mean because Agal and I were having a great time!  We went back to Karen’s and played in the garden, but I had to keep going in to use the toilet – lots!  Just as we were in the car and about to leave I said “wee”. Mum thought it was just a ploy to go back in and stay longer, but I managed to squeeze one out just to prove her wrong.

2019:  Had a major PT session yesterday so waddled into work today. Just under 2 weeks until my mountain run on the 27th. Mum and I looked at some rooms and cottages yesterday but need to confirm numbers before we book as Snowdonia is not cheap! Fortunately its on pay day as bank loan was not approved. If you would like to support me in raising money for crohns and colitis UK, follow my story or cheer me on  then please follow my link at http://www.justgiving.com/Mountaintimetrial or chronically_livingcd on insatgram

#toddlers #mums #play #parks #toilettrainng #gymsession #mountaintrek #snowdon #snowdonia #wales #crohns #colitis #IBD #instagram #justgiving #fundraising

July 11th – Empty Purses and Bank Accounts

1999:  Woke up when I heard Dandell and Dessica playing.  We all had great fun playing until the mum’s finally decided to emerge – to discover the upstairs totally trashed.  We all played outside in the sandpit and on the push bikes. Mum and I left at midday and so ensued the usual routine, the only difference being that I awoke on the settee to the sound of the ice cream man – it just doesn’t get better than that!  Only problem was mummy’s purse was empty!  Luckily mummy avoided tears by finding some pennies in our big whiskey bottle collection pot, and I chose a screwball minus the bubble gum (only because mummy would let me have it).  Once I had it I wouldn’t let go, even holding on to it whilst doing a wee on my pot – which is fairly tricky when you’re two (and even more impressively I was dry).  I ate my ice cream and the tears began when I realised the lack of ice cream man tune meant that there was also a lack of any more ice cream!  Mum tried to fob me off with ice cream from the freezer but I wasn’t having any of it.  Mummy then tried this thing called diversion and next I knew I was playing with my toy tools.  Nanny and Pa came round and mummy and Pa continued cutting down the trees and shredding them – I got to stay up until half eight watching the industry but still didn’t sleep until gone nine.

2019: Ice cream is still a weakness and mum is never going to win encouraging me to go dairy free when I love it all so much.  My white cells are probably loaded with the MAP bacteria (See June 12th for more information on this and Crohns). One thing that isn’t loaded is my bank account and I today applied for a bank loan to try and clear some debts. The bank agent text to confirm that my application had been received and I should hear in the next 24 hours. I went to Mums and Zof arranged to meet me there after work for tea. She text to ask me what it was and I informed the bank agent that it was mustardy chicken salad. Hope that doesn’t effect the loan application!

#toddlers #food #icecream #friends #play #MAP #crohns #money #finances #loans

July 10th – Nail and Sky Decorations

1999:  I didn’t want breakfast – I wanted a lollipop.  Mum said I could have an ice lolly but then I spied the apple pie and custard ice-cream Nanny had brought for us yesterday.  So, that was breakfast.  Closely followed by a banana on the way to swimming.  We went to Maldon and swum in the ‘bubbles’.  I wanted to stay there all day but mum lured me away with the thought of a Donals burger happy meal.  I did my usual falling asleep trick on the way home and mum did her usual appearing me on the settee trick ready for when I woke up, which I did at 3.15 and in a very happy mood.  I watered the entire garden with the water from my paddling pool and then I decided to paint my toy car and my finger nails.  I held out my hands and said I looked like Aunty Bim which mummy found hysterical.  Aunty Bim has lovely long painted nails – apparently mummy owes her three from when I was born – she’d apparently arrived in the labour room perfectly groomed but mum had somehow snapped three, but it’s okay, I didn’t notice.  This evening we went to Aunty Eesa’s and when we arrived Dandell and Dessica were already in bed, and I soon followed.

2019: Day off today and headed over to see mum who, is now back from visiting in Ireland but off of work due to spinal denervation and fibromyalgia. We had a good catch up about Ireland and the last time I was there for the ball and found the above pic of me meeting up with Jacob again after 11 years  and with Kate about to let Abby’s balloons go the day after the ball.

#arthritis #fibromyalgia #Ireland #denervation #toddlers #childhood #adulthood #Abbyharding memorialfoundation #beauty #nails #Maldon #swimming #Mcdonalds #friends


July 9th – Painting a Smile with Scars

1999:  I insisted on playing under mummy’s bed at 6am but and she wasn’t too impressed.  It was good fun though – I’d removed all the toilet rolls from the bathroom cupboard and created a new storage space below the bed!    We walked to the shops and then to the park and while we were there the fire engine arrived.  This was meant to be for the children at playschool to look at, but guess who got first look inside?  And mummy was second.  We went home and played in the front garden, for a change.  I was allowed to bring my car and bike out whilst mummy cut the grass.  It was a very hot day today and Mummy filled up half of my shell with water so I had a paddling pool one side and a sandpit the other.  Mummy got the paints out and I painted 3 nice pictures as well as my feet, mummy’s feet, my car and the paving slabs in the garden.  Nanny popped round with 4 new pairs of shorts and two posters for my room which mummy and I put up tonight.  After tea we went for another walk down to the shops as mum had forgotten to get the milk when we went earlier!  I didn’t mind though as I got to chomp on a strawberry Cornetto on the way back.  

2019:  So a year ago I’d had surgery, walked, weed, eaten and pooed and was finally allowed to come home and posted this:

“You know its mad what trauma can do to your mind; I ised to be so conscious about my body , always wanted to have good aesthetics and have the “perfect” body image; and after going through 18 months of hell and finally getting surgery; you know what? I don’t care what should be right or wrong or what the “perfect” image should be, Im just right in my own way, my scars define me and what I have been through physically, emotionally and mentally. Jack is back and Im walking with a smile on my face and bringing scars to 2018.

#crohns #IBD #chronicillness #toddlers #childhood #adulthood #fun #surgery

July 8th – All Work and No Play

1999:  We picked up Uncle Teddy (who’s now back at his own house) this morning and then to Nan’s.  Nan packed a bag full of food and we piled in the car and headed for Burnham.  We had a nice long walk by the water, stopped for a picnic, followed by 2 ice-creams.  On the way home I fell asleep and awoke on the settee at 3.30, whereupon we got back into the car and went to Aunty Eesa’s.  I stroked Daisy dog (very brave) and played with Dandell and Dessica and we had a great pillow fight. We stayed for sausages, Alphabites and beans and then bundled into the bath.  I thought it was great fun to soak Dandell’s hair but Aunty Eesa wasn’t quite as amused.  Apparently it’s not hair wash day.  Well, if you’d only have said! Home to bed

2019: Work work work today. No ice creams or fun – apart from cooking tea.  Getting restless now.  Need another city break with my queen. Loved Budapest and feel the need to get away. Still, will be away at the end of the month but not so sure running up and down a mountain can be counted as a break!

#toddlers #family #Burnham #childhood #adulthood #icecream #Budapest #Citybreak #Snowdon