November 7th – From Music to Musings

1999: Up at 7.15, mum and I sat down stairs drinking tea and milk.  I started ‘playing’ my Teletubbies bin just like a drum and then as a stage.  Mum seemed to prefer the drum version. It was quite nice today so I played in the garden ‘lots’ whilst mummy cut all the plants.  I just can’t understand her, she spends all that time dragging me round garden centres and planting them, just to cut them all down again!  We emptied the sandpit and washed it all down, along with all my garden toys ready for winter.   I ate bacon and beans in my ‘house’ but it wasn’t a very good cafe – I had to ask for my cuppa!  I was very wet from the water and mum was very muddy so we had a lovely hot bath mid-afternoon.  We went to Nanny and Pa’s and stayed for tea.  Afterwards Nanny took me home as mummy’s gone out again.  Once home we discovered that mum had accidentally turned the heating off and the house was freezing.  Not that I minded much as it meant I got a cuddle, under the blanket, with Nanny on the settee.

2019: So glad I have a recovery day today.   I literally feel so exhausted all the time since I’ve been having my infusions and trying to balance and juggle life is so tough at the moment.  Its so hard to get the motivation when you are not all there. I think this is where my forgetfulness comes in as well as brain fog. I’ve always been forgetful but lately its just getting worse and worse. I think when I struggle with my mental health, I have so much anxiety that my brain just cuts out anything that’s actually important

.#children #parents #gardening #crohns #mentalhealth #infusions #anxiety #music 


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I may do stupid things and make light of them but deep down there’s a reason and I love exploration, even if I cannot fully understand the outcome!

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