1999: Apparently I kept crying out in my sleep last night – dreaming or poorly – who knows? Not me – I was asleep! I had Calpol this morning as was feeling grouchy and a bit chesty. Playschool this morning and did another painting which I proudly told mummy was “for you”, when she came to collect me. Tonight I had a play in the garden and after tea had a bath with mum which was great fun – throwing flannels at each other! All the walls in my room are now painted and for once mum’s done it right with the colour choice. I went to sleep in mummy’s bed tonight as mum doesn’t seem to want to trust me with the wet paint.
2019: Perhaps flannel throwing therapy would be good right now. I think the hardest thing about Crohn’s is not the physical issues, it’s the mental and psychological side that’s the hardest to cope with and control. I had a pre medical app with my gastro and he said “I presume you don’t want another surgery” I said no…but now I think about it, honestly…I’d rather endure a few weeks of recovery again to have the possibility of all the ulcerations removed to stop at least a part of the issue, than have to start trialing a new medication again. –
I think it’s more PTSD again that even tho i’ve gone through all of my past things like surgery and surviving sepsis with around a 72% chance of death; that I STILL have to be starting over again with the same check ups and trials.
I think it’s tough for men also to speak more openly about mental health and my Crohn’s has a huge impact on my mental health, depression is affected by the amount of serotonin, and 90% of serotonin is from the stomach! So I hope you can see how natural and normal it is if you suffer from mental health issues when you suffer from IBD. –
I personally don’t talk about my issues as I don’t feel like it helps or relieves me, I have my own way of dealing with problems…I guess i’m just here to say that if you suffer then don’t worry, you’re not the only one struggling, find what helps you, find what triggers you, we’re all on a journey and there’s no right or wrong turn, we are all trying to get to the same destination, and we all will; just in a distant time, it’s a marathon, not a Race.
I have now been to pick up my mirtazapine which was prescribed 10 days ago and will hopefully bounce back soon.
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