September 9th – A Spoonful of Sugar Helps the Medicine go Downstairs

1999: All the nines this morning – not so with the time though – up at 6.30 bright and breezy.  Off to Edons.  Went to toddlers this morning and proudly told everyone I’m going to “playschool tomorrow”.  Mum collected me from the swimming pool where Hayley and Dan were having their lessons.  We had cold chicken for tea; I had my hair cut and a bath and was asleep by six on the settee

2019: Got in from the airport at 4.30am. Had a few hours sleep at mms and then off to James Paget Hospital for Barium.  Had to keep going back in for more x-ray. Not sure if bad pictures or more bad news but nothing was said. Then onto see the IBD nurse who has advised I should be in for Infliximab in the next few weeks. Meanwhile mum was at home with Zof giving a teaching session on Crohn’s, autoimmune, immunosuppressants and sepsis! Mum has also heard of stem cell treatment for Crohn’s but they need to obliterate the immune system with chemo first and then reset it with stem cells. Mums not too optimistic about this but to be honest Id be happy to do any trials if there is a hope of a cure. For more info on Crohn’s and Colitis and Infliximab go to

And when I got back to mums ……. I fell asleep on the settee with Zof. Well mum was subjecting me to the ruturn of Mary Poppins (but I will take the DVD home 😊)

#mums #toddlers #sleep #crohns #IBD #infliximab #stemcelltreatment #chemo #movies


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I may do stupid things and make light of them but deep down there’s a reason and I love exploration, even if I cannot fully understand the outcome!

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