1999: It was very hot and sunny yesterday but today there is no sun, but it is still warm so we had some garden play. I have felt a bit miserable and told mummy I was poorly. I had some medicine and at 11.15 I laid on the settee with juice and my blanket and fell asleep. Today I received my first appointment reminder for the dentist. Oooh, I hope I’m braver than mummy! I woke up at two and mum and I got our togs on and walked to the park. After a while we went to the shop for ice-cream which ended up on the slide and most other areas around the park. We had fish cakes and chips, with loads of sauce and made a picnic of it in the garden.
2019: Today I am fundraising at work for Crohns and Colitis with my mountain trek less than a month away now. This time last year I was having 28 cm of my ileum removed and re-sectioned. I was very excited about this due to the amount of pain, grief, anxiety and depression it had caused. Unfortunately I didn’t get the outcome I had been anticipating BUT, I am on the road to recovery and hopefully will soon have colonoscopy and Barium to clear the way for 8 weekly infusions. Meanwhile, I have a mountain to run up and down. To read more of my story or to support or cheer me on, you can contact me on Instagram chronically_livingcd or http://www.justgiving.com/Mountaintimetrial
#toddlers #childhood #adulthood #fundraising #crohns #IBD #colitis #chronicillness #notalldisabilitiesarevisible #mentalhealth #anxiety #depression #surgery