June 12th – The Big MAP Shave

1999  I woke mum at three shouting “mummy, mummy, mummy”.  She came to, to find me falling out of her bed (she didn’t even know I’d got in).  She managed to catch hold of my legs and pull me back just in time.  Mum made cooked breakfast this morning, but I only ate the bacon.  It’s rainy but warm this morning.  I didn’t want to go swimming – I wanted to go to the park.  Mummy took me to Whacky warehouse which was good fun.  I put 20p in a machine to get some Jooster sweets but I opened the door too early and they fell all over the floor so we had to try again.  40p for 11 Joosters and mummy ended up eating the lot because I didn’t even like them!  Mum bought me a new pair of trainers and a big boy’s booster seat (which she now feels was a mistake because I discovered a new game – undoing the seat belt whilst in transit!) and an Action Man bag to take my many changes of clothes to Edons.   I had a bacon roll from the burger van (well two bites) and a can of lemonade which I was apparently meant to share with mum! Oh well, she got double bacon roll – even if she didn’t actually want it. 

2019: Today mum text me as has just realised, the day I am doing my run up and down Snowdon for @crohnsandcolitisuk, is the same date that a year ago that  she had her hair shaved off to raise money for The MAP Vaccine – a potential cure for Crohn’s. The vaccine is in its second phase of human trials and could bring relief to 4 million sufferers worldwide, including 1.2 million in the USA and 250,000 in the UK. MAP (Mycobacterium avium subspecies paratuberculosis) is a known cause of Johne’s disease, a form of inflammatory bowel disease affecting domestic livestock, which is very similar to Crohn’s. With Prof. Hermon-Taylors develop of the MAP test in humans, 92% of Crohn’s patients have been found to have this in their tissues. It is believed this is passed on from cattle, especially through their milk. Sterilisation is the only potential way to rid milk of this so, if you can tolerate the taste, buy sterilised. Thanks to the Prof and his team at Kings College London, they have developed a vaccine that will potentially eradicate this from the human tissues. For more information go to http://www.crohnsmapvaccine.com/

#toddlers #childhood #adulthood #mums #parents #crohns #Johnesdisease #cattle #milk #Wales #Snowdon #MAP #MAPVaccine #KingsCollegeLondon



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I may do stupid things and make light of them but deep down there’s a reason and I love exploration, even if I cannot fully understand the outcome!

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