1999: Monday morning. Up bright and early at 6.30. Had a cuddle on the settee and then mum had to get ready for work. Same old routine really, only mum made some fried bread and she had an egg too. Went to Edons and when mum collected me I was one very tired little boy. We had bolognaise for tea and sat out in the garden eating it. I ate most of it but then opted to finish a bag of crisps that Edon had given me earlier. Had a very quick bath and was in bed and asleep by seven.
2019: Mum text me to see how I was feeling and I responded that I had had to come home from work due to tight chest and breathing problems.
Me: No. Been feeling shite all week. Sore throat and tight chest
Mum: Are you taking your steroids
Mum: Which ones are they?
Me: Same as I’ve always had. Budesonide
Apparently mum rang 5 times. And then sent several are you ok? texts. Nothing. She rang Zof who advised I really had been quite breathless at work today and she had wanted me to stay in the Wellness room at work so I wasn’t alone. But I wanted to come home. Mum decided to ring an ambulance but just as she was about to I rang and said “I WAS HAVING A POO”. Then entailed the conversation about sore throat being signs of low white cell count, how quickly I’d gone into sepsis previously blah blah blah. It ended with us agreeing she really needs to cut those extra long apron strings but she was sending me a mummy hug anyway and how it had been so much easier when she knew where I was, what I was doing and who I was with. Texts tonight:
Mum: You have told Zof the signs to look out for and when to get help/
Me: Yes Mother!
#mums #toddlers #crohns #IBD #work #childhood #adulthood #immunosupressants #steroids #apronstrings