May 6th – Burning Bums with Crohns

1999:  Woke mum at 5.45 to tell her I had done a poo and lots more followed – everywhere.  She had to ring Nan and ask her to have me for the day.  Nan came round and we waved mum off from the lounge window and I blew her a huge kiss.  Had a bit of a problem today – every time I blew off I kept on pooing myself.  Mum came home at 4.45 and after Nan had gone I told her my bum was “hot” and then I went off to do another burning poo!  We had meatballs with gravy and mash (I did the mashing) it was nice – especially mums.  It always seems to taste better off of her plate.  I had a bath, and after 5 minutes I braved actually sitting down in the water, but it was a bit sore.

2019:  Monday morning and back to work. Burning poo? Like vindaloo. And fancy feeding me meatballs and gravy!!! TBH I’d still eat it now. Just food. Any food. Some days I just crave food and others I don’t want to eat a thing

#crohns #IBD #toddlers #childhood #adulthood #food #appetite

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I may do stupid things and make light of them but deep down there’s a reason and I love exploration, even if I cannot fully understand the outcome!

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