November 8th – Baby Sleeps

1999  Slept right through until 8 o’clock.  In mums good books now – until mum asked me to go to the toilet 5 times but I had better things to do (even though mum says I was “messing around” – what does she know?) and ended up wetting myself.  This continued throughout most of the day at Edons.  I chose Alphabites, beans and ‘ish ‘ingers for tea and ate it all up.  Mummy and I played cake ladies, and then ice cream and sweet ladies.  I had a bath and when mum was drying me she told me she was a tired baby.  Well I put her straight – she’s “not a baby”.  She then asked me what she was then.  Surely she should know the answer at her age!  I told her anyway by saying “you little girl”.  Why she found this funny I don’t know.

2019: Oh the young days before political correctness. It would probably be cake, ice-cream and sweets persons nowadays! I have worn different hats today too but not had as much fun. Started labouring at 6 this morning, then went on to do my insurance job this afternoon and then drove Zof and her brother and sister to Coventry to see her Nan and Grandad. Now shattered. Think I will probably sleep straight through tonight and even later than  8am!

#children #parents #childminders #toilettraining #play #work #building #insurance #driving

November 7th – From Music to Musings

1999: Up at 7.15, mum and I sat down stairs drinking tea and milk.  I started ‘playing’ my Teletubbies bin just like a drum and then as a stage.  Mum seemed to prefer the drum version. It was quite nice today so I played in the garden ‘lots’ whilst mummy cut all the plants.  I just can’t understand her, she spends all that time dragging me round garden centres and planting them, just to cut them all down again!  We emptied the sandpit and washed it all down, along with all my garden toys ready for winter.   I ate bacon and beans in my ‘house’ but it wasn’t a very good cafe – I had to ask for my cuppa!  I was very wet from the water and mum was very muddy so we had a lovely hot bath mid-afternoon.  We went to Nanny and Pa’s and stayed for tea.  Afterwards Nanny took me home as mummy’s gone out again.  Once home we discovered that mum had accidentally turned the heating off and the house was freezing.  Not that I minded much as it meant I got a cuddle, under the blanket, with Nanny on the settee.

2019: So glad I have a recovery day today.   I literally feel so exhausted all the time since I’ve been having my infusions and trying to balance and juggle life is so tough at the moment.  Its so hard to get the motivation when you are not all there. I think this is where my forgetfulness comes in as well as brain fog. I’ve always been forgetful but lately its just getting worse and worse. I think when I struggle with my mental health, I have so much anxiety that my brain just cuts out anything that’s actually important

.#children #parents #gardening #crohns #mentalhealth #infusions #anxiety #music 


November 6th – Santa For Christmas?

1999:  Mummy had her nails done again his morning, which was all a bit boring.  When she was finished we headed straight for Aunty Eesa’s as I’d decided I didn’t want to go swimming.  We had lunch and all played in the garden which was great fun.  The only problem today is that somehow, someone keeps wetting my trousers.  We went to Asda where we saw Nanny demonstrating Christmas cake – yum, yum.  Later, once home, Nanny called round for a cup of tea and afterwards mummy and I had some pasta and then my bath.  I fell asleep on the settee just as a lady called Leah came in and the next I knew it was 1.30, I was in my bed, but rudely awoken by loud voices downstairs.  Bloomin’ adults, I wish they’d learn to keep the noise down.  I bet mum’s been out with that Martel guy again!  Anyway, I was allowed down for my bottle of milk and then back to bed and sleep.

2019: Infusion day. 3rd loading dose in 5 weeks and I have gained another 5 kilo = 98 kg! Not sure if this is the stopping smoking and craving food or the infusions but perhaps I could get a part time job as Santa this year?! Still its better than being underweight and looking like a skeleton. Generally I’m feeling good, just tired from the loading doses, but I think I have found what is good for me treatment wise

#crohns #children #parents #granparents #christmas #infiximab #infusions #pottytraining 

November 5th – Smoke and Fireworks

1999:  Had a bath and got downstairs 5 minutes into play bus.  Brought a lovely letter home from play school – with my name in it.  I came top of the sponsor colours – thanks to Nan!  Mum was very proud.  Mum’s smoking again and went out in the garden for a cigarette this evening.  It was dark and there were fireworks going off and I was very frightened for her.  I said “no mummy not out there.  Fireworks hurt you”.  After much reassurance through the glass of the back door, I was okay by which time she’d finished her cigarette and was coming back in.  Went to the toilet then pooed my pants so had to have a shower and fell asleep cuddling mum on the sofa.

2019: Pleased to say I have bought a new vape and have not smoked for a couple of weeks now.  I know it’s bad for Crohn’s so gonna try and stick with it. On a late today so was able to sit my H&S environmental test for my CSCS card but didn’t pass so have to resit.

#kids #parents #Playschool #Fireworks #smoking #building

November 4th – Its All a Mix UP!

1999: Up at seven and we were lazy  again.  I reminded mummy of her pottery car and plant that I bought her yesterday with my own pennies and she says it’s lovely and very special.  Toddlers this morning but when Edon went to get her coffee I cried and decided to cling – I didn’t want to risk her going anywhere without me again.  Have been in a lovely mood all day, which seemed to make the biguns cheerful.  I gave mummy a big hug when she came to collect me and got nicely into the car without any fuss.  We had pasta for tea and then cuddled up on the settee with strawberry milk!  I was starting to drop off when I saw Uncle Terry on an advert for a show – I was very excited, but fell asleep cuddling mum a while later.

2019: Off today for infusions – only to find its not today – its Wednesday. Not a great start to the week as all planned to do my health and safety training for working on site tomorrow at midday but now have to go into work today and tomorrow and throw £21 down the drain and reschedule. Then need to take Wednesday and Thursday off instead for infusions and recovery with a formal absence meeting already pending and redundancies. Just hope they take anxiety, depression and Crohn’s as the disabilities they are and not random sickness ……

#children #parents #childminders #crohns #mentalhealth #infliximab #toddlers #cuddles

November 3rd Why its Good to Pick those Bogies

1999: Into mum’s bed in the early hours and slept until seven when we dragged ourselves out of bed.  Had bix for brekkie, which I ended up finishing off in the car.  Went to Nan’s at 11.30 and we had a working lunch round Asda. Had some passport photos taken today at Asda but the stool was a bit too low and I only had half a head.  Mummy arrived home at half five, Pa was already there and I’d eaten my tea.  I’d spoken to Pa on the phone earlier and said “I wish you were here” and suddenly he was in the lounge.  Tonight I proudly picked my own nose,  before only mum could do it.  Only difference was I proudly showed everyone – and then ate it. 

2019:  Not gonna lie. Still pick my nose but I flick it or wipe it now! There is actually a book called “Why Picking Your nose and eating bogies is good for you – and other great stories!” But I can’t bloody  find it now. All I can find is goody books like “Don’t pick your nose Ned” and “Picking your Nose: Change your bad habits now!” But scientifically (because I have to know how everything works and why) picking your nose clears it and eating our boogers can actually help build up your immunity and make you better equipped for fighting infections. Infliximab infusions and bogie picking here I come!


November 2nd – Blood Test Stress

1999: Initially up at four, but once I had my juice I happily returned to bed with Po and declined mums offer of “join us”.  Slept again until seven.  Not much to report today apart from a poo nappy and two sets of wet clothes.  I was very tired when mum collected me and was asleep by 5.15

2019: Back to work today (I’m glad I didn’t do a shift swap to watch the disastrous England rugby playing ) but need to get my bloods done ready for Mondays in infusion but its Saturday and phlebotomy at the hospitals are closed (yesterday was too early). Mum is away to Lincolnshire for a week before I finish work and cannot do them. She suggested I contact ambulatory at JPH and see if they would do, which they did.  

#children #parents #crohns #mentalhealth #bloodtest #infliximab #toilettraining #work